When I was 20, I started having joint pain. Initially, I didn't even consider going to the doctor because I knew it would be dismissed, but after a few weeks the pain got so severe I had trouble doing the simplest everyday tasks.
Sharing her insights on autoimmune disease research and OADR's role in tackling them, Victoria Shanmugam, MBBS, MRCP, FACR, CCD, Director of the OADR, presented at the Society for Women's Health Research's (SWHR) March 2024 Policy Advisory Council meeting.
To bring attention to these disparities and help support individuals impacted by lupus, SWHR added lupus to the Women’s Health Equity Initiative campaign this May, in recognition of Lupus Awareness Month.
This Lupus Awareness Month, SWHR is reflecting on the need for urgent action to close the gender, race, and ethnic disparities in lupus outcomes.
The Living Well with Lupus Toolkit for Women aims to educate women and their support systems around lupus risk factors, symptoms, wellness tips, and conversations with health care providers.
These are takeaways from SWHR's August 2022 meeting of an interdisciplinary group of policy experts, researchers, clinicians, and patient advocates in women’s autoimmune and immune-mediated diseases.
This June 2022 Working Group gathered clinicians, researchers, patients and patient advocates, and policy leaders for a discussion on gaps and opportunities in lupus care for women.
Juana Mata, a patient advocate and co-founder of Looms for Lupus, shared her journey with lupus in a conversation with SWHR.