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DTSTART;TZID=America/New_York:20221109T140000
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DTSTAMP:20241206T201344Z
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UID:10000392-1668002400-1668006000@swhr.org
SUMMARY:Narcolepsy & Women’s Health: A Wake-Up Call
DESCRIPTION:Narcolepsy is a chronic sleep disorder that is characterized by persistent and excessive daytime sleepiness and an inability to regulate sleep-wake cycles. In some cases\, cataplexy – a sudden loss or activation of muscle tone in one or more parts of the body – can be triggered by strong emotions. Narcolepsy Type 1 (NT1) occurs with cataplexy\, whereas Narcolepsy Type 2 (NT2) does not. \nNarcolepsy symptoms are often mistaken for mood disorders\, behavioral issues\, and other conditions\, which result in significant delays in diagnosis. While men and women experience similar symptoms\, women spend an average of 12 additional years pursuing an accurate diagnosis compared to men. Narcolepsy can present significant challenges to daily living\, including managing employment\, school\, and relationships. There is no cure for narcolepsy\, however\, with proper treatment\, symptoms can be stabilized and even improve over time. \nThe Society for Women’s Health Research has created a patient toolkit and other resources to increase awareness about narcolepsy and to help women identify symptoms earlier\, reduce delays in obtaining appropriate care\, and make informed decisions about treatments and long-term care management. \nSWHR hosted a webinar to share educational information about narcolepsy\, including diagnosing\, treating\, and managing care\, and to highlight the experiences of women living with narcolepsy. \n  \n\nFollow the conversation on Twitter at @SWHR and #SWHRtalksSleep. \nThis event is free and open to the public.
URL:https://swhr.org/event/narcolepsy-womens-health-a-wake-up-call/
LOCATION:Virtual Event
CATEGORIES:Patient Event,Policymaker Event,Science Event,SWHR Event
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DTSTART;TZID=America/New_York:20221116T130000
DTEND;TZID=America/New_York:20221116T140000
DTSTAMP:20241206T201942Z
CREATED:20221026T170155Z
LAST-MODIFIED:20241206T201942Z
UID:10000403-1668603600-1668607200@swhr.org
SUMMARY:Psoriatic Arthritis: A Woman’s Toolkit to Soar Above the Pain
DESCRIPTION:More than 8 million individuals in the United States have psoriasis. This chronic inflammatory skin disease is characterized by patches of red or discolored and irritated skin that are often covered by flaky white or gray scales\, depending on the skin type. An estimated 10-30% of people with psoriasis also develop psoriatic arthritis (PsA)–a type of inflammatory arthritis linked to psoriasis. \nApproximately 40% of people with PsA report significant impacts on their everyday life\, and although PsA occurs equally in women and men\, women often report experiencing more fatigue and functional limitations. Women are also less likely to respond to some treatments and achieve remission than men. \nPatients are not often assessed for joint pain during psoriasis care visits\, delaying a timely diagnosis by years\, and potentially resulting in irreversible joint damage. Psoriasis (and subsequent PsA) is also under-diagnosed among African Americans and other individuals with skin of color due to differences in clinical presentation. \nSWHR hosted a series of webinars to share educational information about the impact of psoriatic arthritis on women’s health. The events discussed how to improve health outcomes through recognizing and addressing symptoms\, comorbidities\, treatment options\, and barriers to accessing quality care\, while highlighting the diverse experiences of women across the lifespan. \nThe SWHR Psoriatic Arthritis series includes: \n\nPsoriatic Arthritis: More than Just Sore Joints (October 17\, 2022)\nPsoriatic Arthritis: A Woman’s Toolkit to Soar Above the Pain (November 16\, 2022)\n\n\n  \nFollow the conversation on Twitter at @SWHR and #SWHRtalksSkin and #SWHRtalksAutoimmune. \nThis event is free and open to the public.
URL:https://swhr.org/event/psoriatic-arthritis-a-womans-toolkit-to-soar-above-the-pain/
LOCATION:Virtual Event
CATEGORIES:Patient Event,Public Event,Science Event,SWHR Event,Webinar
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