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SUMMARY:Closing the Loop for Lupus: A Wellness Toolkit for Women
DESCRIPTION:Lupus is a chronic autoimmune disease characterized by widespread inflammation that often results in damage to the joints\, skin\, brain\, lungs\, kidneys and blood vessels. An estimated 1.5 million Americans have some form of lupus\, and 90% are women between the ages of 15 and 44. Lupus is more prevalent among women of color\, who also develop symptoms at younger ages and have more severe symptoms and complications from the disease.Systemic lupus erythematosus (SLE) is the most common type of lupus\, affecting multiple parts of the body\, and cutaneouslupus erythematosus (CLE) primarily affects theskin. Because the symptoms of lupus mimic other diseases\, a majority of patients are initially misdiagnosed\, and it can take up to 6 years and seeing multiplehealth care specialists before receiving an accurate diagnosis. Women living with lupus have a greater risk for developing other chronic conditions\, such as heart disease and osteoporosis\, or lupus nephritis due to kidney inflammation and damage. Although lupus does not affect fertility\, pregnant women should be aware of potential complications\, such as preeclampsia. \nThere is no cure for lupus\, and the limited treatments available primarily focus on reducing symptom flares\, resulting in insufficiently improved health outcomes.There is a pressing need to address gaps in research and clinical education\, and to develop policy solutions that will eliminate barriers to access for treatments and quality care for women. \nSWHR hosted a series of webinars to share educational information about the impact of lupus on women’s health.The events discussed how to improve health outcomes through recognizing and addressing symptoms\, comorbidities\, treatment options\, and barriers to accessing quality care\, while highlighting the diverse experiences of women living with lupus. \nThe SWHR Closing the Loop for Lupus series includes: \n\nClosing the Loop for Lupus in Women’s Health Care (June 15\, 2022)\nA Fireside Chat (October 17\, 2022)\nA Wellness Toolkit for Women (December 5\, 2022)\n\nFollow the conversation on Twitter at @SWHR and #SWHRtalksLupus. \nThis event is free and open to the public.
URL:https://swhr.org/event/closing-the-loop-for-lupus-a-wellness-toolkit-for-women/
LOCATION:Virtual Event
CATEGORIES:Patient Event,Public Event,Science Event,SWHR Event,Webinar
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