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X-WR-CALDESC:Events for Society for Women's Health Research
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DTSTART;TZID=America/New_York:20210713T100000
DTEND;TZID=America/New_York:20210713T111500
DTSTAMP:20241113T170852Z
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UID:10000212-1626170400-1626174900@swhr.org
SUMMARY:Congressional Briefing: Supporting Women with Fibroids Through Policy Action
DESCRIPTION:The Society for Women’s Health Research (SWHR) hosted a virtual congressional briefing to raise awareness of policy needs to improve care for individuals with uterine fibroids\, a condition that is underfunded and often overlooked in research. \nApproximately 26 million Americans ages 15–50 have fibroids\, making it one of the most common gynecological conditions nationwide and a growing and overlooked public health issue. One study found that more than 80% of Black women and nearly 70% of white women have fibroids by age 50. Black women are at higher risk for the disease\, tend to develop fibroids earlier in life and have larger tumors\, and are three times more likely to be hospitalized for the condition than white women. \nStigma around menstrual issues has contributed to a lack of public awareness about fibroids and insufficient research and development of novel treatments. Fibroids account for an estimated $5.9 billion to $34.4 billion in annual costs to the U.S. health care system\, but fibroids research received only $17 million in National Institutes of Health (NIH) funding in 2019\, putting it in the bottom 50 of nearly 300 tracked conditions. \nDuring the briefing\, panelists provided an update on the state of fibroid research\, discussed unmet needs in the field\, and shared insight on what policy actions could help improve care for women with fibroids. They also discussed the Stephanie Tubbs Jones Uterine Fibroids Research and Education Act of 2021 (H.R. 2007)\, which would increase research funding for fibroids\, improve awareness and training\, and seek to measure cost to government payers. \nThis event was in partnership with the Fibroid Foundation\, the Black Women’s Health Imperative\, the White Dress Project\, and the Society of Interventional Radiology.
URL:https://swhr.org/event/congressional-briefing-supporting-women-with-fibroids-through-policy-action/
LOCATION:Virtual Event
CATEGORIES:Congressional Briefing,Patient Event,Policymaker Event,SWHR Event
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DTSTART;TZID=America/New_York:20210727T110000
DTEND;TZID=America/New_York:20210727T150000
DTSTAMP:20240822T152600Z
CREATED:20210622T011148Z
LAST-MODIFIED:20240822T152600Z
UID:10000226-1627383600-1627398000@swhr.org
SUMMARY:Noninvasive Prenatal Screening: Eliminating Barriers to Access and Reducing Disparities
DESCRIPTION:July 27\, 11 a.m.- 3 p.m. — Noninvasive Prenatal Screening (Day 1) \nJuly 30\, 11 a.m.-3 p.m. —Noninvasive Prenatal Screening Policy Discussion (Day 2) \nGenetic screening is a prime example of translating advances in human genomics research into an intervention with a direct benefit to public health. A variety of methods are available to screen adults\, fetuses\, and newborns — all with a goal of gaining insight into the risk posed by certain heritable conditions. \nNoninvasive prenatal screening (NIPS) can help women make informed decisions about their reproductive health and pregnancy management\, as well as improve maternal and fetal outcomes by allowing preparation to care for children who may be affected by a genetic disorder. However\, challenges with integrating research and development advances into health care and regulatory systems have left gaps in preventive care for patients. \nAs part of our Genetic Screening Program\, SWHR convened an interdisciplinary working group of health care providers\, medical professional society leaders\, patients/patient advocates\, policy experts\, and diagnostic company scientists for a closed roundtable meeting on July 27 and July 30 to discuss how to eliminate barriers to access and reduce health disparities related to NIPS.
URL:https://swhr.org/event/nips-roundtable-eliminating-barriers-to-access-and-reducing-disparities/2021-07-27/
LOCATION:Virtual Event
CATEGORIES:Policymaker Event,Roundtable,Science Event,SWHR Event
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210729T110000
DTEND;TZID=America/New_York:20210730T150000
DTSTAMP:20240822T151652Z
CREATED:20210624T004648Z
LAST-MODIFIED:20240822T151652Z
UID:10000227-1627556400-1627657200@swhr.org
SUMMARY:Expanded Carrier Screening: Eliminating Barriers to Access and Reducing Disparities
DESCRIPTION:July 29\, 11 a.m.- 3 p.m. — Expanded Carrier Screening (Day 1) \nJuly 30\, 11 a.m.-3 p.m. — Expanded Carrier Screening Policy Discussion (Day 2) \nGenetic screening is a prime example of translating advances in human genomics research into an intervention with a direct benefit to public health. A variety of methods are available to screen adults\, fetuses\, and newborns — all with a goal of gaining insight into the risk posed by certain heritable conditions. \nExpanded carrier screening (ECS) can help women make informed decisions about their reproductive health and pregnancy management\, as well as improve maternal and fetal outcomes by allowing preparation to care for children who may be affected by a genetic disorder. However\, challenges with integrating research and development advances into health care and regulatory systems have left gaps in preventive care for patients. \nAs part of our Genetic Screening Program\, SWHR is convening an interdisciplinary working group of health care providers\, medical professional society leaders\, patients/patient advocates\, policy experts\, and diagnostic company scientists for a closed roundtable meeting on July 29-30 to discuss how to eliminate barriers to access and reduce health disparities related to ECS.
URL:https://swhr.org/event/ecs-roundtable-eliminating-barriers-to-access-and-reducing-disparities/
LOCATION:Virtual Event
CATEGORIES:Policymaker Event,Roundtable,Science Event,SWHR Event
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210730T080000
DTEND;TZID=America/New_York:20210730T170000
DTSTAMP:20240822T152600Z
CREATED:20210622T011148Z
LAST-MODIFIED:20240822T152600Z
UID:10000724-1627632000-1627664400@swhr.org
SUMMARY:Noninvasive Prenatal Screening: Eliminating Barriers to Access and Reducing Disparities
DESCRIPTION:July 27\, 11 a.m.- 3 p.m. — Noninvasive Prenatal Screening (Day 1) \nJuly 30\, 11 a.m.-3 p.m. —Noninvasive Prenatal Screening Policy Discussion (Day 2) \nGenetic screening is a prime example of translating advances in human genomics research into an intervention with a direct benefit to public health. A variety of methods are available to screen adults\, fetuses\, and newborns — all with a goal of gaining insight into the risk posed by certain heritable conditions. \nNoninvasive prenatal screening (NIPS) can help women make informed decisions about their reproductive health and pregnancy management\, as well as improve maternal and fetal outcomes by allowing preparation to care for children who may be affected by a genetic disorder. However\, challenges with integrating research and development advances into health care and regulatory systems have left gaps in preventive care for patients. \nAs part of our Genetic Screening Program\, SWHR convened an interdisciplinary working group of health care providers\, medical professional society leaders\, patients/patient advocates\, policy experts\, and diagnostic company scientists for a closed roundtable meeting on July 27 and July 30 to discuss how to eliminate barriers to access and reduce health disparities related to NIPS.
URL:https://swhr.org/event/nips-roundtable-eliminating-barriers-to-access-and-reducing-disparities/2021-07-30/
LOCATION:Virtual Event
CATEGORIES:Policymaker Event,Roundtable,Science Event,SWHR Event
END:VEVENT
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