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DTSTART;TZID=America/New_York:20220601T120000
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DTSTAMP:20240513T173102Z
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UID:10000251-1654084800-1654092000@swhr.org
SUMMARY:SWHR Policy Advisory Council Meeting
DESCRIPTION:SWHR’s Policy Advisory Council will meet for its quarterly closed-door meeting. The Policy Advisory Council is a forum for industry\, nonprofit\, and other health care stakeholders to partner with SWHR to support emerging scientific research and public policy that will improve women’s health. Council members will have an opportunity to work collaboratively to develop policy positions\, promote research\, and create materials designed benefit women’s health. \nLEARN MORE
URL:https://swhr.org/event/swhr-policy-advisory-council-meeting-11/
LOCATION:Virtual Meeting
CATEGORIES:Policymaker Event,SWHR Event,SWHR Policy Advisory Council
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DTSTART;TZID=America/New_York:20220622T120000
DTEND;TZID=America/New_York:20220622T160000
DTSTAMP:20240822T153112Z
CREATED:20220511T175933Z
LAST-MODIFIED:20240822T153112Z
UID:10000324-1655899200-1655913600@swhr.org
SUMMARY:Empowering Women with Psoriatic Arthritis: Improving the Patient Journey
DESCRIPTION:More than 8 million Americans and 125 million people worldwide have psoriasis\, a chronic inflammatory skin disease that is characterized by patches of red or discolored and irritated skin\, often covered by flaky white or gray scales\, depending on the skin type. An estimated 10-30% of people with psoriasis also develop psoriatic arthritis (PsA)\, a type of inflammatory arthritis linked to psoriasis. Of those with PsA\, 85% develop the skin disease before the joint disease. Psoriasis often appears between the ages of 15-25\, while PsA usually develops between the ages of 30-50.  \nBoth psoriasis and psoriatic arthritis can have significant impacts on quality of life. Symptoms such as joint pain and swelling\, bone deformity\, discolored and scaly skin patches\, and fatigue can be widespread\, painful\, and debilitating. Nearly 60% of people with psoriasis and approximately 40% of people with PsA report that the disease is a large problem in their everyday life. Studies show that although PsA occurs equally in women and men\, women often experience more fatigue and functional limitations\, and are less likely to respond to some treatments and achieve remission than men. Moreover\, after menopause\, women are at an increased risk to develop comorbidities such as fibromyalgia\, cardiovascular disease\, and Crohn’s disease.  \nThere is no diagnostic test for PsA; therefore\, if patients are not assessed for joint pain during clinical encounters for psoriasis care\, significant diagnostic delays can result\, and timely diagnosis of PsA is critical to avoid irreversible joint damage. Furthermore\, psoriasis is often under-diagnosed among African Americans and other individuals with skin of color due to differences in clinical presentation\, likely resulting in a subsequent under-diagnosis of PsA as well. Addressing gaps in research\, clinical care\, and health care policy\, as well as disparities in diagnosis and treatment\, would significantly improve the burden on women living with psoriatic arthritis.  \nThe Society for Women’s Health Research (SWHR) convened an interdisciplinary Psoriatic Arthritis Working Group of health care providers\, researchers\, patients and patient advocates\, and health care policy leaders for a closed\, roundtable meeting in June 2022. During the roundtable\, the Working Group discussed the significant health\, social\, and economic impact of psoriatic arthritis on women’s health across the lifespan. 
URL:https://swhr.org/event/empowering-women-with-psoriatic-arthritis-improving-the-patient-journey/
LOCATION:Virtual Event
CATEGORIES:Policymaker Event,Roundtable,Science Event,SWHR Event
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