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X-WR-CALDESC:Events for Society for Women's Health Research
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DTSTART;TZID=America/New_York:20221109T140000
DTEND;TZID=America/New_York:20221109T150000
DTSTAMP:20241206T201344Z
CREATED:20221007T202329Z
LAST-MODIFIED:20241206T201344Z
UID:10000392-1668002400-1668006000@swhr.org
SUMMARY:Narcolepsy & Women’s Health: A Wake-Up Call
DESCRIPTION:Narcolepsy is a chronic sleep disorder that is characterized by persistent and excessive daytime sleepiness and an inability to regulate sleep-wake cycles. In some cases\, cataplexy – a sudden loss or activation of muscle tone in one or more parts of the body – can be triggered by strong emotions. Narcolepsy Type 1 (NT1) occurs with cataplexy\, whereas Narcolepsy Type 2 (NT2) does not. \nNarcolepsy symptoms are often mistaken for mood disorders\, behavioral issues\, and other conditions\, which result in significant delays in diagnosis. While men and women experience similar symptoms\, women spend an average of 12 additional years pursuing an accurate diagnosis compared to men. Narcolepsy can present significant challenges to daily living\, including managing employment\, school\, and relationships. There is no cure for narcolepsy\, however\, with proper treatment\, symptoms can be stabilized and even improve over time. \nThe Society for Women’s Health Research has created a patient toolkit and other resources to increase awareness about narcolepsy and to help women identify symptoms earlier\, reduce delays in obtaining appropriate care\, and make informed decisions about treatments and long-term care management. \nSWHR hosted a webinar to share educational information about narcolepsy\, including diagnosing\, treating\, and managing care\, and to highlight the experiences of women living with narcolepsy. \n  \n\nFollow the conversation on Twitter at @SWHR and #SWHRtalksSleep. \nThis event is free and open to the public.
URL:https://swhr.org/event/narcolepsy-womens-health-a-wake-up-call/
LOCATION:Virtual Event
CATEGORIES:Patient Event,Policymaker Event,Science Event,SWHR Event
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DTSTART;TZID=America/New_York:20221114T130000
DTEND;TZID=America/New_York:20221114T140000
DTSTAMP:20241206T201604Z
CREATED:20221025T203825Z
LAST-MODIFIED:20241206T201604Z
UID:10000402-1668430800-1668434400@swhr.org
SUMMARY:Moving Conversations About Alzheimer’s Disease into Policy and Practice: An SWHR Town Hall
DESCRIPTION:Alzheimer’s disease (AD) is a rapidly growing and costly public health crisis that has a disproportionate impact on women\, and especially women of color. \nImproving AD outcomes—for both patients and caregivers—requires a multi-layered approach that involves communities\, clinicians\, nonprofit groups\, organizations\, and state and federal policymakers. Achieving this shift will require not only enacting federal policies that support access to care\, make early detection easier\, and prioritize research investments in cognitive health\, but importantly\, it also requires ensuring that people in communities across the country know about AD and its risk factors\, how to support their cognitive health\, and how to prepare should they become a caregiver for a friend or loved one with AD or related dementias. \nDuring this SWHR town hall event\, heard from speakers about how individuals across communities can take steps to prepare for AD and how organizations and policymakers alike are taking steps to improve AD outcomes and reach diverse and underserved communities. Panelists answered questions from attendees about how we as a society can better serve different populations and reach new communities as well as learn from members of the audience about how they prefer to receive information. \n\n  \n\nFollow the conversation on Twitter at @SWHR and #SWHRtalksAlzheimers. \nThis event is free and open to the public.
URL:https://swhr.org/event/moving-conversations-about-alzheimers-disease-into-policy-and-practice-an-swhr-town-hall/
LOCATION:Virtual Event
CATEGORIES:Policymaker Event,Public Event,Science Event,SWHR Event,Webinar
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DTSTART;TZID=America/New_York:20221130T120000
DTEND;TZID=America/New_York:20221130T140000
DTSTAMP:20240513T173845Z
CREATED:20211129T232057Z
LAST-MODIFIED:20240513T173845Z
UID:10000253-1669809600-1669816800@swhr.org
SUMMARY:SWHR Policy Advisory Council Meeting
DESCRIPTION:SWHR’s Policy Advisory Council will meet for its quarterly closed-door meeting. The Policy Advisory Council is a forum for industry\, nonprofit\, and other health care stakeholders to partner with SWHR to support emerging scientific research and public policy that will improve women’s health. Council members will have an opportunity to work collaboratively to develop policy positions\, promote research\, and create materials designed benefit women’s health. \nLearn More \n 
URL:https://swhr.org/event/swhr-policy-advisory-council-meeting-13/
LOCATION:Virtual Meeting
CATEGORIES:Policymaker Event,SWHR Event,SWHR Policy Advisory Council
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