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SUMMARY:Congressional Briefing on Patient Engagement and Rare Disease
DESCRIPTION:PCORI\, in partnership with the National Health Council\, will host a congressional briefing focused on meaningful patient engagement in clinical trials. \nRep. Bilirakis will kick off the briefing with recorded remarks. Individuals from PCORI Engagement Award projects will share their experiences with rare diseases and how they’ve navigated and fostered research participation. \nLearn More
URL:https://swhr.org/event/congressional-briefing-on-patient-engagement-and-rare-disease/
CATEGORIES:Patient Event,Policymaker Event,Public Event
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