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DTSTART;TZID=America/New_York:20260720T090000
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UID:10001053-1784538000-1784563200@swhr.org
SUMMARY:Navigating Family Building in Women with Narcolepsy
DESCRIPTION:Narcolepsy is a chronic neurological disorder of the sleep-wake cycle\, characterized by persistent and excessive daytime sleepiness\, an ability to regulate sleep-wake cycles\, and\, in some cases\, cataplexy. Narcolepsy can have widespread impacts on daily life\, including challenges with employment\, school\, and relationships. While there are no sex differences in the rates or symptoms of narcolepsy\, women are more likely to experience a long pathway to an accurate diagnosis\, up to 12 years longer than men. Women living with narcolepsy also face unique challenges throughout their lifespan\, including when considering pregnancy. Many women living with narcolepsy report concerns about medication safety during pregnancy and breastfeeding and dissatisfaction with preconception clinical guidance\, risk communication\, and symptom management strategies. There are also research and care gaps leading to variability in treatment approaches and limited shared decision-making with patients. Building awareness of knowledge gaps while providing education and resources for women living with narcolepsy can offer necessary opportunities to make informed decisions about treatment and family building. \nThe Society for Women’s Health Research (SWHR) is convening an interdisciplinary Narcolepsy and Family Building Working Group of researchers\, health care providers\, and patient advocates for a closed convening in July 2026. During the convening\, the Working Group will discuss family building for women living with narcolepsy with an emphasis on gaps in research\, care\, and practice.
URL:https://swhr.org/event/navigating-family-building-in-women-with-narcolepsy/
CATEGORIES:Patient Event,Roundtable,Science Event,SWHR Event
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