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X-WR-CALDESC:Events for Society for Women's Health Research
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DTSTART:20210314T070000
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DTSTART;TZID=America/New_York:20220309T120000
DTEND;TZID=America/New_York:20220309T140000
DTSTAMP:20240513T172915Z
CREATED:20211129T231652Z
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UID:10000250-1646827200-1646834400@swhr.org
SUMMARY:SWHR Policy Advisory Council Meeting
DESCRIPTION:SWHR’s Policy Advisory Council will meet for its quarterly closed-door meeting. The Policy Advisory Council is a forum for industry\, nonprofit\, and other health care stakeholders to partner with SWHR to support emerging scientific research and public policy that will improve women’s health. Council members will have an opportunity to work collaboratively to develop policy positions\, promote research\, and create materials designed benefit women’s health. \nLEARN MORE
URL:https://swhr.org/event/swhr-policy-advisory-council-meeting-10/
LOCATION:Virtual Event
CATEGORIES:Policymaker Event,SWHR Event,SWHR Policy Advisory Council
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220318T120000
DTEND;TZID=America/New_York:20220318T130000
DTSTAMP:20241113T211547Z
CREATED:20220214T223619Z
LAST-MODIFIED:20241113T211547Z
UID:10000274-1647604800-1647608400@swhr.org
SUMMARY:The Fertility Journey: Understanding Options and Navigating Care
DESCRIPTION:Infertility—defined as the inability to conceive after 1 year of regular\, unprotected sex—is increasingly common in the United States. Nearly 1 in 8 couples have trouble getting pregnant or sustaining their pregnancy. While infertility occurs equally in men and women\, women tend to bear a disproportionate focus and burden in treatment and management. Treatment options span from medications to invasive surgery and assisted reproductive technologies. About 12% of women ages 15-49 have received some type of infertility service. \n\n\n\nNavigating fertility treatment can be complex with significant emotional\, physical\, and financial stressors. Factors such as cost\, invasiveness of treatment options\, and potential success rate can hinder women accessing the appropriate care and create disparities in reproductive health. Additional research\, improved patient and clinical education\, and effective policy solutions are needed to improve overall quality and access to fertility care for all women. The Society for Women’s Health Research has created resource guides for patients and providers to increase awareness and quality of fertility health concerning evaluating infertility\, understanding fertility treatment options\, and navigating care. \nSWHR hosted a virtual public forum to share educational information about fertility options for women and feature women who will highlight ways they navigated infertility and their maternal health care journey. \n\n\n\n\n\n\n\n\n\n\nThis public forum is part of SWHR’s Fertility Program. It builds on SWHR’s Fertility Roundtable held in September 2021 that sought to identify gaps in research\, clinical practice\, policy\, and education and address disparities and barriers to access. Discussion during this event included reference to the Clinician Resource Guide to Fertility Health Care and the Women’s Resource Guide to Fertility Health Care\, both released in February 2022.
URL:https://swhr.org/event/the-fertility-journey-understanding-options-and-navigating-care/
LOCATION:Virtual Event
CATEGORIES:Patient Event,SWHR Event
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DTSTART;TZID=America/New_York:20220331T100000
DTEND;TZID=America/New_York:20220331T170000
DTSTAMP:20240626T192635Z
CREATED:20220214T224401Z
LAST-MODIFIED:20240626T192635Z
UID:10000275-1648720800-1648746000@swhr.org
SUMMARY:Narcolepsy Program Roundtable: The Impact of Narcolepsy on Women’s Health Across the Lifespan
DESCRIPTION:Narcolepsy is a chronic neurological disorder of the sleep-wake cycle\, characterized by excessive daytime sleepiness\, nighttime sleep disturbances\, and REM sleep-related phenomena that intrude into wakefulness. Narcolepsy is categorized into two types – NT1 associated with cataplexy (sudden loss of muscle tone during wakefulness) and NT2 without muscle weakness. \nNarcolepsy can be a debilitating chronic condition with widespread impacts on daily life\, including challenges with employment\, school\, and relationships\, particularly for women acting as the primary family caregiver. Difficulty maintaining treatment regimens and unpleasant side effects pose barriers to effective symptom management. Although women and men are about equally affected and report similar narcolepsy-related symptoms\, women are more likely to experience an extremely long pathway to an accurate diagnosis\, up to 12 years longer than men. Many women with narcolepsy also face challenges during pregnancy and lactation\, often stopping medication near conception and suffering from additional symptoms as a result. Building awareness about narcolepsy symptoms and treatment options among both patients and providers will offer women opportunities to identify symptoms earlier\, reduce the delay in obtaining appropriate care\, and make informed decisions about treatment throughout the life course. \nSWHR convened an interdisciplinary working group of health care providers\, researchers\, patients/patient advocates\, and policy leaders for a closed\, roundtable meeting on March 31\, 2022. During the roundtable\, the SWHR Narcolepsy Working Group discussed scientific and policy issues around narcolepsy in women\, including strategies for better symptom management and how to improve access to treatments and care.
URL:https://swhr.org/event/narcolepsy-program-roundtable-the-impact-of-narcolepsy-on-womens-health-across-the-lifespan/
LOCATION:Virtual Event
CATEGORIES:Roundtable,Science Event,SWHR Event
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