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X-WR-CALDESC:Events for Society for Women's Health Research
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DTSTART;TZID=America/New_York:20220601T100000
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DTSTAMP:20240822T151254Z
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UID:10000302-1654077600-1654102800@swhr.org
SUMMARY:Addressing Barriers in Research and Health Care for Women Living with Lupus
DESCRIPTION:Lupus is a chronic autoimmune disease where the body attacks its own tissues\, creating widespread inflammation and symptoms throughout the body\, often resulting in organ tissue damage – most commonly in the joints\, skin\, brain\, lungs\, kidneys and blood vessels. Systemic lupus erythematosus (SLE) is the most common type of lupus\, affecting multiple parts of the body\, whereas cutaneous lupus erythematosus (CLE) primarily affects the skin. Sometimes individuals can develop a temporary druginduced lupus due to reactions from certain medications\, and infants can acquire autoantibodies from a mother with SLE that can result in a rare form of neonatal lupus. An estimated 1.5 million Americans have some form of lupus\, and 90% are women between the ages of 15 and 44. Lupus puts women at a greater risk for other chronic conditions\, such as heart disease and osteoporosis\, and lupus nephritis is a frequent complication resulting from kidney inflammation and damage in patients with SLE. Although women with lupus can safely become pregnant\, 20% of pregnant women with lupus develop preeclampsia\, and the risk for additional complications increases in women with a history of kidney disease\, high blood pressure\, and diabetes. \nBecause the symptoms of lupus mimic other diseases\, a majority of patients are initially misdiagnosed\, and it can take up to 6 years and seeing 4 or 5 different health care specialists before receiving an accurate diagnosis. Lupus is also more prevalent among women of color – Black women are three times more likely to develop the disease than white women\, and Black and Latina women are reported to develop symptoms at younger ages and have more severe symptoms and complications from lupus. There is also no cure for lupus and the limited treatments available are focused on reducing symptom flares\, resulting in a significant impact on quality of life. \nFurthermore\, the economic burden of lupus is far-reaching – with high health care costs\, significant out-of-pocket expenses for patients\, and loss of productivity in the workplace. Policy solutions are needed to prioritize research investments for the study and treatment of lupus in women\, access to quality care and therapeutics\, and affordability and coverage with a health equity lens. Addressing gaps in research\, clinical\, and health care policy\, as well as disparities in diagnosis and treatment\, would significantly improve the burden on women living with lupus. \nThe Society for Women’s Health Research (SWHR) convened an interdisciplinary Lupus Working Group of health care providers\, researchers\, patients and patient advocates\, and health care policy leaders for a closed\, roundtable meeting in June 2022. During the roundtable\, the Working Group discussed scientific and policy issues related to the impact of lupus on women’s health across the lifespan.
URL:https://swhr.org/event/addressing-barriers-in-research-and-health-care-for-women-living-with-lupus/
LOCATION:Virtual Event
CATEGORIES:Roundtable,Science Event,SWHR Event
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220601T120000
DTEND;TZID=America/New_York:20220601T140000
DTSTAMP:20240513T173102Z
CREATED:20211129T231904Z
LAST-MODIFIED:20240513T173102Z
UID:10000251-1654084800-1654092000@swhr.org
SUMMARY:SWHR Policy Advisory Council Meeting
DESCRIPTION:SWHR’s Policy Advisory Council will meet for its quarterly closed-door meeting. The Policy Advisory Council is a forum for industry\, nonprofit\, and other health care stakeholders to partner with SWHR to support emerging scientific research and public policy that will improve women’s health. Council members will have an opportunity to work collaboratively to develop policy positions\, promote research\, and create materials designed benefit women’s health. \nLEARN MORE
URL:https://swhr.org/event/swhr-policy-advisory-council-meeting-11/
LOCATION:Virtual Meeting
CATEGORIES:Policymaker Event,SWHR Event,SWHR Policy Advisory Council
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220608T120000
DTEND;TZID=America/New_York:20220608T124500
DTSTAMP:20241114T181418Z
CREATED:20220427T192202Z
LAST-MODIFIED:20241114T181418Z
UID:10000316-1654689600-1654692300@swhr.org
SUMMARY:How Hormones Can Tell a Fertility Story
DESCRIPTION:In the United States\, there are more than 100 diagnostic tests and procedures available for detecting diseases and monitoring their progression. Diagnostic tools are also used to guide treatments and evaluate their effectiveness. Some tests are invasive\, such as a biopsy or endoscopy; whereas others are noninvasive\, such as x-rays and ultrasound imaging procedures. \nInnovations in diagnostics provide access to health information\, helping women make informed decisions about their health care at every stage of their lives. Screening and diagnostic testing can lead to earlier detection of disease\, improve health outcomes\, and contribute toward reducing health disparities among women. \nSWHR is hosting a series of public forums to share educational information about the importance and value of innovative diagnostics throughout the lifespan and across disease states and conditions. The events discuss how to improve health outcomes for diseases and conditions that disproportionately or exclusively affect women\, with special a focus on cancers\, reproductive health\, and bone health. \nThe SWHR Value of Diagnostics within Women’s Health series includes: \n\nHow Vaccines and Screening Can Prevent Cervical Cancer (January 26\, 2022)\nImproving Lives by Detecting Sexually Transmitted Infections Early (April 13\, 2022)\nAssessing and Promoting Bone Health Across the Lifespan (May 18\, 2022)\nHow Hormones Can Tell a Fertility Story (June 8\, 2022)\nOvarian Cancer Screening: More than a Pelvic Exam (September 7\, 2022)\nUnderstanding the Tests that Could Save My Breasts (October 12\, 2022)
URL:https://swhr.org/event/how-hormones-can-tell-a-fertility-story/
LOCATION:Virtual Event
CATEGORIES:Public Event,Science Event,SWHR Event,Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220615T120000
DTEND;TZID=America/New_York:20220615T130000
DTSTAMP:20241114T182109Z
CREATED:20220511T175156Z
LAST-MODIFIED:20241114T182109Z
UID:10000323-1655294400-1655298000@swhr.org
SUMMARY:Closing the Loop for Lupus in Women’s Health Care
DESCRIPTION:Lupus is a chronic autoimmune disease characterized by widespread inflammation that often results in damage to the joints\, skin\, brain\, lungs\, kidneys and blood vessels. An estimated 1.5 million Americans have some form of lupus\, and 90% are women between the ages of 15 and 44. Lupus is more prevalent among women of color\, who also develop symptoms at younger ages and have more severe symptoms and complications from the disease. Systemic lupus erythematosus (SLE) is the most common type of lupus\, affecting multiple parts of the body\, and cutaneous lupus erythematosus (CLE) primarily affects the skin. Because the symptoms of lupus mimic other diseases\, a majority of patients are initially misdiagnosed\, and it can take up to 6 years and seeing multiple health care specialists before receiving an accurate diagnosis. Women living with lupus have a greater risk for developing other chronic conditions\, such as heart disease and osteoporosis\, or lupus nephritis due to kidney inflammation and damage. Although lupus does not affect fertility\, pregnant women should be aware of potential complications\, such as preeclampsia. \nThere is no cure for lupus\, and the limited treatments available primarily focus on reducing symptom flares\, resulting in insufficiently improved health outcomes. There is a pressing need to address gaps in research and clinical education\, and to develop policy solutions that will eliminate barriers to access for treatments and quality care for women. \nSWHR hosted a virtual public forum to discuss the impacts of lupus on women’s health\, including the experiences of women living with lupus\, and how to navigate access and management of care. \nThis public forum is a follow-up to SWHR’s Lupus Roundtable in June 2022\, to identify gaps in research\, clinical practice\, policy\, and education. \nThis is event part of the SWHR Closing the Loop for Lupus series\, which includes: \n\nClosing the Loop for Lupus in Women’s Health Care (June 15\, 2022)\nA Fireside Chat (October 17\, 2022)\nA Wellness Toolkit for Women (December 5\, 2022)\n\n 
URL:https://swhr.org/event/closing-the-loop-for-lupus-in-womens-health-care/
LOCATION:Virtual Event
CATEGORIES:Patient Event,Public Event,Science Event,SWHR Event,Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220622T120000
DTEND;TZID=America/New_York:20220622T160000
DTSTAMP:20240822T153112Z
CREATED:20220511T175933Z
LAST-MODIFIED:20240822T153112Z
UID:10000324-1655899200-1655913600@swhr.org
SUMMARY:Empowering Women with Psoriatic Arthritis: Improving the Patient Journey
DESCRIPTION:More than 8 million Americans and 125 million people worldwide have psoriasis\, a chronic inflammatory skin disease that is characterized by patches of red or discolored and irritated skin\, often covered by flaky white or gray scales\, depending on the skin type. An estimated 10-30% of people with psoriasis also develop psoriatic arthritis (PsA)\, a type of inflammatory arthritis linked to psoriasis. Of those with PsA\, 85% develop the skin disease before the joint disease. Psoriasis often appears between the ages of 15-25\, while PsA usually develops between the ages of 30-50.  \nBoth psoriasis and psoriatic arthritis can have significant impacts on quality of life. Symptoms such as joint pain and swelling\, bone deformity\, discolored and scaly skin patches\, and fatigue can be widespread\, painful\, and debilitating. Nearly 60% of people with psoriasis and approximately 40% of people with PsA report that the disease is a large problem in their everyday life. Studies show that although PsA occurs equally in women and men\, women often experience more fatigue and functional limitations\, and are less likely to respond to some treatments and achieve remission than men. Moreover\, after menopause\, women are at an increased risk to develop comorbidities such as fibromyalgia\, cardiovascular disease\, and Crohn’s disease.  \nThere is no diagnostic test for PsA; therefore\, if patients are not assessed for joint pain during clinical encounters for psoriasis care\, significant diagnostic delays can result\, and timely diagnosis of PsA is critical to avoid irreversible joint damage. Furthermore\, psoriasis is often under-diagnosed among African Americans and other individuals with skin of color due to differences in clinical presentation\, likely resulting in a subsequent under-diagnosis of PsA as well. Addressing gaps in research\, clinical care\, and health care policy\, as well as disparities in diagnosis and treatment\, would significantly improve the burden on women living with psoriatic arthritis.  \nThe Society for Women’s Health Research (SWHR) convened an interdisciplinary Psoriatic Arthritis Working Group of health care providers\, researchers\, patients and patient advocates\, and health care policy leaders for a closed\, roundtable meeting in June 2022. During the roundtable\, the Working Group discussed the significant health\, social\, and economic impact of psoriatic arthritis on women’s health across the lifespan. 
URL:https://swhr.org/event/empowering-women-with-psoriatic-arthritis-improving-the-patient-journey/
LOCATION:Virtual Event
CATEGORIES:Policymaker Event,Roundtable,Science Event,SWHR Event
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