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X-WR-CALNAME:Society for Women's Health Research
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X-WR-CALDESC:Events for Society for Women's Health Research
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DTSTART;TZID=America/New_York:20221109T140000
DTEND;TZID=America/New_York:20221109T150000
DTSTAMP:20241206T201344Z
CREATED:20221007T202329Z
LAST-MODIFIED:20241206T201344Z
UID:10000392-1668002400-1668006000@swhr.org
SUMMARY:Narcolepsy & Women’s Health: A Wake-Up Call
DESCRIPTION:Narcolepsy is a chronic sleep disorder that is characterized by persistent and excessive daytime sleepiness and an inability to regulate sleep-wake cycles. In some cases\, cataplexy – a sudden loss or activation of muscle tone in one or more parts of the body – can be triggered by strong emotions. Narcolepsy Type 1 (NT1) occurs with cataplexy\, whereas Narcolepsy Type 2 (NT2) does not. \nNarcolepsy symptoms are often mistaken for mood disorders\, behavioral issues\, and other conditions\, which result in significant delays in diagnosis. While men and women experience similar symptoms\, women spend an average of 12 additional years pursuing an accurate diagnosis compared to men. Narcolepsy can present significant challenges to daily living\, including managing employment\, school\, and relationships. There is no cure for narcolepsy\, however\, with proper treatment\, symptoms can be stabilized and even improve over time. \nThe Society for Women’s Health Research has created a patient toolkit and other resources to increase awareness about narcolepsy and to help women identify symptoms earlier\, reduce delays in obtaining appropriate care\, and make informed decisions about treatments and long-term care management. \nSWHR hosted a webinar to share educational information about narcolepsy\, including diagnosing\, treating\, and managing care\, and to highlight the experiences of women living with narcolepsy. \n  \n\nFollow the conversation on Twitter at @SWHR and #SWHRtalksSleep. \nThis event is free and open to the public.
URL:https://swhr.org/event/narcolepsy-womens-health-a-wake-up-call/
LOCATION:Virtual Event
CATEGORIES:Patient Event,Policymaker Event,Science Event,SWHR Event
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DTSTART;TZID=America/New_York:20221114T130000
DTEND;TZID=America/New_York:20221114T140000
DTSTAMP:20241206T201604Z
CREATED:20221025T203825Z
LAST-MODIFIED:20241206T201604Z
UID:10000402-1668430800-1668434400@swhr.org
SUMMARY:Moving Conversations About Alzheimer’s Disease into Policy and Practice: An SWHR Town Hall
DESCRIPTION:Alzheimer’s disease (AD) is a rapidly growing and costly public health crisis that has a disproportionate impact on women\, and especially women of color. \nImproving AD outcomes—for both patients and caregivers—requires a multi-layered approach that involves communities\, clinicians\, nonprofit groups\, organizations\, and state and federal policymakers. Achieving this shift will require not only enacting federal policies that support access to care\, make early detection easier\, and prioritize research investments in cognitive health\, but importantly\, it also requires ensuring that people in communities across the country know about AD and its risk factors\, how to support their cognitive health\, and how to prepare should they become a caregiver for a friend or loved one with AD or related dementias. \nDuring this SWHR town hall event\, heard from speakers about how individuals across communities can take steps to prepare for AD and how organizations and policymakers alike are taking steps to improve AD outcomes and reach diverse and underserved communities. Panelists answered questions from attendees about how we as a society can better serve different populations and reach new communities as well as learn from members of the audience about how they prefer to receive information. \n\n  \n\nFollow the conversation on Twitter at @SWHR and #SWHRtalksAlzheimers. \nThis event is free and open to the public.
URL:https://swhr.org/event/moving-conversations-about-alzheimers-disease-into-policy-and-practice-an-swhr-town-hall/
LOCATION:Virtual Event
CATEGORIES:Policymaker Event,Public Event,Science Event,SWHR Event,Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221116T130000
DTEND;TZID=America/New_York:20221116T140000
DTSTAMP:20241206T201942Z
CREATED:20221026T170155Z
LAST-MODIFIED:20241206T201942Z
UID:10000403-1668603600-1668607200@swhr.org
SUMMARY:Psoriatic Arthritis: A Woman’s Toolkit to Soar Above the Pain
DESCRIPTION:More than 8 million individuals in the United States have psoriasis. This chronic inflammatory skin disease is characterized by patches of red or discolored and irritated skin that are often covered by flaky white or gray scales\, depending on the skin type. An estimated 10-30% of people with psoriasis also develop psoriatic arthritis (PsA)–a type of inflammatory arthritis linked to psoriasis. \nApproximately 40% of people with PsA report significant impacts on their everyday life\, and although PsA occurs equally in women and men\, women often report experiencing more fatigue and functional limitations. Women are also less likely to respond to some treatments and achieve remission than men. \nPatients are not often assessed for joint pain during psoriasis care visits\, delaying a timely diagnosis by years\, and potentially resulting in irreversible joint damage. Psoriasis (and subsequent PsA) is also under-diagnosed among African Americans and other individuals with skin of color due to differences in clinical presentation. \nSWHR hosted a series of webinars to share educational information about the impact of psoriatic arthritis on women’s health. The events discussed how to improve health outcomes through recognizing and addressing symptoms\, comorbidities\, treatment options\, and barriers to accessing quality care\, while highlighting the diverse experiences of women across the lifespan. \nThe SWHR Psoriatic Arthritis series includes: \n\nPsoriatic Arthritis: More than Just Sore Joints (October 17\, 2022)\nPsoriatic Arthritis: A Woman’s Toolkit to Soar Above the Pain (November 16\, 2022)\n\n\n  \nFollow the conversation on Twitter at @SWHR and #SWHRtalksSkin and #SWHRtalksAutoimmune. \nThis event is free and open to the public.
URL:https://swhr.org/event/psoriatic-arthritis-a-womans-toolkit-to-soar-above-the-pain/
LOCATION:Virtual Event
CATEGORIES:Patient Event,Public Event,Science Event,SWHR Event,Webinar
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DTSTART;TZID=America/New_York:20221121T130000
DTEND;TZID=America/New_York:20221121T150000
DTSTAMP:20240701T201428Z
CREATED:20221122T003536Z
LAST-MODIFIED:20240701T201428Z
UID:10000408-1669035600-1669042800@swhr.org
SUMMARY:Cancer Prevention through the HPV Vaccine: A Women's Health Initiative
DESCRIPTION:According to the Centers for Disease Control and Prevention (CDC)\, 85% of people will get a human papillomavirus (HPV) infection in their lifetime. While most HPV infections go away on their own\, some may persist and cause cervical\, vaginal\, vulvar\, penile\, anal\, and/or oropharyngeal cancers. The HPV vaccine has proven effective in reducing the incidence of HPV infections\, genital warts\, and cervical precancers. Despite guidance from the CDC and American Cancer Society supporting HPV vaccination in childhood (ideally between 9-12 years old)\, vaccine hesitancy still presents a barrier to optimal HPV vaccine uptake in the United States. Parental anxieties surrounding the HPV vaccine may include safety concerns\, the association of HPV with early sexual activity\, and other fears stemming from misinformation spread online. Parents have also cited an absent and/or insufficient physician recommendation as a factor in their decision to decline vaccination. Women\, as the primary healthcare decision-makers in the home\, are in a unique position to ensure their children successfully receive the HPV vaccine series on time and through to completion. Women need accessible\, science-based\, and culturally-relevant information to make informed decisions about HPV vaccination for their families. \nSWHR convened an interdisciplinary HPV Vaccine Education Working Group of public health researchers and professionals\, community leaders\, and health care providers for a closed\, roundtable meeting in November 2022. During the roundtable\, the Working Group discussed how to eliminate barriers to HPV vaccine confidence\, access\, and uptake through the development of educational materials designed to reach women as immunization decision-makers.
URL:https://swhr.org/event/cancer-prevention-through-the-hpv-vaccine/
LOCATION:Virtual Event
CATEGORIES:Roundtable,Science Event,SWHR Event
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221130T120000
DTEND;TZID=America/New_York:20221130T140000
DTSTAMP:20240513T173845Z
CREATED:20211129T232057Z
LAST-MODIFIED:20240513T173845Z
UID:10000253-1669809600-1669816800@swhr.org
SUMMARY:SWHR Policy Advisory Council Meeting
DESCRIPTION:SWHR’s Policy Advisory Council will meet for its quarterly closed-door meeting. The Policy Advisory Council is a forum for industry\, nonprofit\, and other health care stakeholders to partner with SWHR to support emerging scientific research and public policy that will improve women’s health. Council members will have an opportunity to work collaboratively to develop policy positions\, promote research\, and create materials designed benefit women’s health. \nLearn More \n 
URL:https://swhr.org/event/swhr-policy-advisory-council-meeting-13/
LOCATION:Virtual Meeting
CATEGORIES:Policymaker Event,SWHR Event,SWHR Policy Advisory Council
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