BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Society for Women's Health Research - ECPv6.16.5.1//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:Society for Women's Health Research
X-ORIGINAL-URL:https://swhr.org
X-WR-CALDESC:Events for Society for Women's Health Research
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20260308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20261101T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20270314T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20271107T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260717T120000
DTEND;TZID=America/New_York:20260717T124500
DTSTAMP:20260709T180414Z
CREATED:20260709T180414Z
LAST-MODIFIED:20260709T180414Z
UID:10001073-1784289600-1784292300@swhr.org
SUMMARY:Updates on OADR-ORWH\, July 17
DESCRIPTION:“Updates on OADR-ORWH” sessions are hosted quarterly by OADR-ORWH Director Vicki Shanmugam\, MBBS\, FRCP\, FACR\, CCD. These sessions provide insights on the office’s activities\, engage community members\, and highlight how OADR-ORWH is achieving its mission at NIH. \nAt each “Updates on OADR-ORWH” session\, Dr. Shanmugam will pose questions to the community; these questions can be viewed on the event page in advance of each session.  Please reach out to OADRInfo@nih.gov with questions. \nLearn More
URL:https://swhr.org/event/updates-on-oadr-orwh-july-17/
CATEGORIES:Public Event,SWHR Event,Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260720T090000
DTEND;TZID=America/New_York:20260720T160000
DTSTAMP:20260610T142525Z
CREATED:20260603T183412Z
LAST-MODIFIED:20260610T142525Z
UID:10001053-1784538000-1784563200@swhr.org
SUMMARY:Navigating Family Building in Women with Narcolepsy
DESCRIPTION:Narcolepsy is a chronic neurological disorder of the sleep-wake cycle\, characterized by persistent and excessive daytime sleepiness\, an ability to regulate sleep-wake cycles\, and\, in some cases\, cataplexy. Narcolepsy can have widespread impacts on daily life\, including challenges with employment\, school\, and relationships. While there are no sex differences in the rates or symptoms of narcolepsy\, women are more likely to experience a long pathway to an accurate diagnosis\, up to 12 years longer than men. Women living with narcolepsy also face unique challenges throughout their lifespan\, including when considering pregnancy. Many women living with narcolepsy report concerns about medication safety during pregnancy and breastfeeding and dissatisfaction with preconception clinical guidance\, risk communication\, and symptom management strategies. There are also research and care gaps leading to variability in treatment approaches and limited shared decision-making with patients. Building awareness of knowledge gaps while providing education and resources for women living with narcolepsy can offer necessary opportunities to make informed decisions about treatment and family building. \nThe Society for Women’s Health Research (SWHR) is convening an interdisciplinary Narcolepsy and Family Building Working Group of researchers\, health care providers\, and patient advocates for a closed convening in July 2026. During the convening\, the Working Group will discuss family building for women living with narcolepsy with an emphasis on gaps in research\, care\, and practice.
URL:https://swhr.org/event/navigating-family-building-in-women-with-narcolepsy/
CATEGORIES:Patient Event,Roundtable,Science Event,SWHR Event
END:VEVENT
END:VCALENDAR