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X-WR-CALDESC:Events for Society for Women's Health Research
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DTSTART;TZID=America/New_York:20260708T150000
DTEND;TZID=America/New_York:20260708T160000
DTSTAMP:20260630T184633Z
CREATED:20260630T184633Z
LAST-MODIFIED:20260630T184633Z
UID:10001068-1783522800-1783526400@swhr.org
SUMMARY:The Stay Sharp Masterclass
DESCRIPTION:If you watched your mother lose her memory\, don’t wait to protect your brain. \nBrain changes associated with dementia begin decades before a diagnosis. For women\, that is midlife — which means the window to act is now. \nJoin Dr. Manna live to explore the Stay Sharp Program: A personalized clinical protocol designed to prevent and reverse brain decline. \nLearn More
URL:https://swhr.org/event/the-stay-sharp-masterclass/
CATEGORIES:Patient Event,Public Event,Webinar
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260714T120000
DTEND;TZID=America/New_York:20260714T130000
DTSTAMP:20260701T192756Z
CREATED:20260701T192623Z
LAST-MODIFIED:20260701T192756Z
UID:10001070-1784030400-1784034000@swhr.org
SUMMARY:Congressional Briefing on Patient Engagement and Rare Disease
DESCRIPTION:PCORI\, in partnership with the National Health Council\, will host a congressional briefing focused on meaningful patient engagement in clinical trials. \nRep. Bilirakis will kick off the briefing with recorded remarks. Individuals from PCORI Engagement Award projects will share their experiences with rare diseases and how they’ve navigated and fostered research participation. \nLearn More
URL:https://swhr.org/event/congressional-briefing-on-patient-engagement-and-rare-disease/
CATEGORIES:Patient Event,Policymaker Event,Public Event
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260720T090000
DTEND;TZID=America/New_York:20260720T160000
DTSTAMP:20260610T142525Z
CREATED:20260603T183412Z
LAST-MODIFIED:20260610T142525Z
UID:10001053-1784538000-1784563200@swhr.org
SUMMARY:Navigating Family Building in Women with Narcolepsy
DESCRIPTION:Narcolepsy is a chronic neurological disorder of the sleep-wake cycle\, characterized by persistent and excessive daytime sleepiness\, an ability to regulate sleep-wake cycles\, and\, in some cases\, cataplexy. Narcolepsy can have widespread impacts on daily life\, including challenges with employment\, school\, and relationships. While there are no sex differences in the rates or symptoms of narcolepsy\, women are more likely to experience a long pathway to an accurate diagnosis\, up to 12 years longer than men. Women living with narcolepsy also face unique challenges throughout their lifespan\, including when considering pregnancy. Many women living with narcolepsy report concerns about medication safety during pregnancy and breastfeeding and dissatisfaction with preconception clinical guidance\, risk communication\, and symptom management strategies. There are also research and care gaps leading to variability in treatment approaches and limited shared decision-making with patients. Building awareness of knowledge gaps while providing education and resources for women living with narcolepsy can offer necessary opportunities to make informed decisions about treatment and family building. \nThe Society for Women’s Health Research (SWHR) is convening an interdisciplinary Narcolepsy and Family Building Working Group of researchers\, health care providers\, and patient advocates for a closed convening in July 2026. During the convening\, the Working Group will discuss family building for women living with narcolepsy with an emphasis on gaps in research\, care\, and practice.
URL:https://swhr.org/event/navigating-family-building-in-women-with-narcolepsy/
CATEGORIES:Patient Event,Roundtable,Science Event,SWHR Event
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260723T190000
DTEND;TZID=America/New_York:20260723T200000
DTSTAMP:20260707T190254Z
CREATED:20260707T190254Z
LAST-MODIFIED:20260707T190254Z
UID:10001072-1784833200-1784836800@swhr.org
SUMMARY:The Benefits of Early Detection: Why Timing Matters
DESCRIPTION:Join AlzInColor and Dr. Charles Windon for an important conversation on why early detection of Alzheimer’s disease and related dementias matters. This session will explore how recognizing early signs of cognitive change can help individuals and families access care\, support\, and planning resources sooner. \nFeatured Speaker: Charles Windon\, MD – Assistant Professor of Clinical Neurology\, UCSF Edward and Pearl Fein Memory and Aging Center \nLearn More
URL:https://swhr.org/event/the-benefits-of-early-detection-why-timing-matters/
CATEGORIES:Public Event,Webinar
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260728
DTEND;VALUE=DATE:20260729
DTSTAMP:20260629T134546Z
CREATED:20260629T134508Z
LAST-MODIFIED:20260629T134546Z
UID:10001067-1785196800-1785283199@swhr.org
SUMMARY:Whole\, Worthy and Free: Oakland
DESCRIPTION:As part of the 2026 Black (in)Fertility Awareness Week (BIAW)\, hosts are heading to the West Coast—bringing community\, conversations\, and commitment to fertility justice to the Oakland area in partnership with the California Black Women’s Health Project. \nWhole\, Worthy\, and Free is an in-person gathering centered on reclaiming joy\, expanding possibilities\, and affirming that everyone deserves to feel whole and worthy—no matter where they are on their fertility journey. This event invites participants into a healing space to explore all aspects of fertility and family building\, from navigating infertility and reproductive health to understanding options and envisioning what’s possible. \nThrough open dialogue\, shared experiences\, and community connection\, we’ll talk about the realities and complexities of fertility while also making intentional space for hope\, joy\, and liberation. Grounded in a reproductive justice framework\, this gathering centers the voices and experiences of Black women and communities\, while challenging the barriers that too often limit access\, information\, and care. \nAs BIAW continues to grow\, this West Coast activation reflects our commitment to meeting communities where they are—creating spaces that inform\, uplift\, and affirm that every journey is valid\, and every person is whole\, worthy\, and free. \nLearn More
URL:https://swhr.org/event/whole-worthy-and-free-oakland/
CATEGORIES:Patient Event
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260729
DTEND;VALUE=DATE:20260730
DTSTAMP:20260629T134329Z
CREATED:20260629T134329Z
LAST-MODIFIED:20260629T134329Z
UID:10001066-1785283200-1785369599@swhr.org
SUMMARY:Black (in)Fertility Awareness Week: Muna Fertility Clinic Tour
DESCRIPTION:The 2026 Black (in)Fertility Awareness Week (BIAW) Muna Fertility Clinic Tour is back. This tour is an immersive\, in-person experience designed to demystify fertility care and expand access to patient-centered reproductive health services. \nHosted at Muna Fertility\, the tour offers participants a behind-the-scenes look at the full fertility journey—from initial consultation through diagnostic testing and treatment pathways. Attendees will move through the clinic space\, gaining insight into key procedures such as ultrasounds\, fertility assessments\, and assisted reproductive technologies\, while learning how care plans are developed and personalized. \nLed by Muna Fertility Founder\, Dr. Karenne Fru and the care team\, the experience centers education\, transparency\, and empowerment—providing space for participants to ask questions\, engage directly with providers\, and better understand their reproductive health options. \nGrounded in a fertility justice framework\, the BIAW 2026 tour prioritizes access\, equity\, and culturally responsive care—highlighting how clinics like Muna are working to serve marginalized communities through inclusive\, personalized reproductive services. \nMore than a tour\, this experience is an entry point into informed decision-making\, advocacy\, and reclaiming autonomy in the family-building journey. \n  \nLearn More
URL:https://swhr.org/event/black-infertility-awareness-week-muna-fertility-clinic-tour/
CATEGORIES:Patient Event
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