Guides & Toolkits
Fact Sheets, Policy Engagement, Publications
03.31.23
The U.S. government—through its programs and initiatives—has an important role to play in improving the lives of those living with autoimmune diseases and conditions and in addressing the significant public health concerns that are associated with these conditions. This ranges from conducting public health education and awareness campaigns to funding critical research on autoimmune diseases... Read more »
Fact Sheets, Policy Engagement, Publications
03.31.23
The Society for Women's Health Research developed the policy brief, "The Need for Diversity in Autoimmune Disease Research Trials: How Overlooking Diversity Hampers Knowledge and Impacts Outcomes," reviews how the exclusion of any population from autoimmune clinical trials limits our understanding of these diseases and leaves us ill-equipped to provide the safest and most effective treatments and interventions.
Fact Sheets, Policy Engagement, Publications
03.13.23
The Society for Women's Health Research developed the policy brief, "Prioritizing Federal Research on Autoimmune and Immune-Mediated Diseases and Conditions," to discuss the state of autoimmune disease research funding and highlight how robust and sustained for this research could improve our understanding of disease pathology and inform the development of improved diagnostic tools and new treatments and interventions.
Access, Fact Sheets, Policy Engagement, Publications
02.10.23
The Society for Women's Health Research developed the policy brief, "Issues Affecting Health Care Coverage and Access for Women with Autoimmune Diseases," to highlight how certain coverage policies, such as prior authorization and step therapy, can affect women and their health care providers and shares policy recommendations that could improve outcomes.
Fact Sheets, Publications
01.23.23
This fact sheet offers a guide to giving strong HPV vaccine recommendations in health care provider conversations with adolescents, parents, or guardians.
Guides & Toolkits, Publications
11.07.22
The Lupus Toolkit was created to support women and their families in the lupus diagnosis and care journey.
Guides & Toolkits, Publications
10.31.22
The Narcolepsy Toolkit was created to aid women living with narcolepsy and their families as they navigate their diagnosis, treatment, and care journeys.
Guides & Toolkits, Publications
10.24.22
This Guide was created by SWHR to support women living with psoriatic arthritis by providing tips and strategies to address PsA diagnosis, management, treatment, care coverage, and every day wellness.
Fact Sheets, Science
09.08.22
This diagnostics fact sheet explores the state of ovarian and breast cancer in the United States and explains the role of testing in health care.
Fact Sheets
08.30.22
This World Narcolepsy Day fact sheet was created to commemorate the awareness day on September 22 and share information to support women living with narcolepsy.
Fact Sheets, Science
08.30.22
The Narcolepsy and Maternal Health fact sheet aims to support women living with narcolepsy who are considering planning for a family and to guide them in early conversations with their providers.
Guides & Toolkits, Video
08.25.22
Built from the Menopause Preparedness Toolkit, this video series features seven segments, based on each of the areas covered in the original toolkit and aiming to empower women through menopause.
Guides & Toolkits, Publications
08.24.22
The NIPS Resource Guide can help provided education and information about the process, risks, and benefits of NIPS, helping give a patient informed consent to proceed with screening.
Access, Fact Sheets, Policy Engagement, Regulatory
07.18.22
This fact sheet provides an overview of autoimmune and immune-mediated diseases are and the related utilization management (UM) policies.
Fact Sheets, Publications
06.28.22
This fact sheet reviews Alzheimer's disease prevalence, the caregiving burden faced by women, and provides policy solutions to improve Alzheimer's disease outcomes for women.
Guides & Toolkits
06.16.22
The Menopause Preparedness Toolkit was created to support women through major menopause milestones and prepare them for conversations with physicians, families, and friends.
Fact Sheets, Publications
05.20.22
This bone health fact sheet reviews bone statistics from across the United States, shares risk factors, and discusses policy's role in improving outcomes and reducing costs.
Guides & Toolkits
02.25.22
This Women's Ferility Guide can help patients, women, and families navigate their fertility options, from creating a reproductive life plan to fertility evaluation and treatment.
Guides & Toolkits
02.25.22
The Clinician Fertility Guide was created to assist health care providers as they work with patients, women, and families to navigate their fertility options.
Fact Sheets
01.18.22
This genetic screening poster focuses on two types of screens, Expanded Carrier Screening and Noninvasive Prenatal Screening, as well as key screening considerations for patients and providers.
Guides & Toolkits
01.10.22
The SWHR Eye Health Toolkit is designed to empower individuals to navigate their eye health and eye care as they age.
Guides & Toolkits
12.15.21
INTRODUCTION Genetic screening exemplifies the translation of advances in human genomics research into early interventions that promote individual public health benefits. A variety of tools and methods are available to screen adults, fetuses, and newborns — all with a goal of gaining insight into the potential outcome of certain genetic conditions. Genetic screening can help... Read more »
Fact Sheets, Publications
12.14.21
DOWNLOAD THE ATOPIC DERMATITIS: DIAGNOSIS AND MANAGEMENT IN PRIMARY CARE FACT SHEET Atopic dermatitis (AD) is a chronic, non-contagious immunological disease in which skin becomes dry, discolored, and itchy. Often referred to as eczema, AD is only one of several conditions considered to be eczema. AD is a systemic disease and is affected by an... Read more »
Guides & Toolkits
11.22.21
Improved immunization rates can assist in reducing disparities in health care and disease across all age groups. Vaccines are an important measure to promote family and public health by slowing, and sometimes preventing, the spread of infectious and dangerous diseases. Through sound research efforts, immunizations have been developed for implementation throughout the life-course. SWHR’s roadmap... Read more »
Guides & Toolkits, Publications
11.16.21
While an estimated 26 million women ages 15-50 in United States have uterine fibroids, these statistics about fibroids are often underestimated. Uterine fibroids (leiomyomas) are tumors made of smooth muscle and fibrous connective tissue that arise from the uterus and are one of the most common gynecological conditions nationwide. Fibroids can develop in any girl... Read more »
Fact Sheets
11.04.21
Updated January 18, 2022. The Society for Women’s Health Research (SWHR) has joined the Society for Maternal-Fetal Medicine (SMFM) and other pregnancy experts in recommending that pregnant and lactating people be vaccinated against COVID-19. The Centers for Disease Control and Prevention (CDC) recommend vaccination for all people aged 5 years and older, including people who... Read more »
Fact Sheets, Publications
10.14.21
In its "Menopause Preparedness" fact sheet, SWHR reviews the health impacts of menopause, discusses research needs related to menopause, and assesses how current policies can affect women's access to menopause treatments.
Fact Sheets, Publications
09.30.21
Vision impairment is one of the most common causes of disability in the United States, and the number of blind or visually impaired Americans is projected to double by 2050. Women are disproportionately affected by some of the most common eye diseases. Eye conditions can also present or affect women differently across the lifespan. Some... Read more »
Fact Sheets, Guides & Toolkits, Publications
09.30.21
Vaccines are designed to train your body to recognize and fight infections. Certain vaccines are safe and recommended for women before, during, and after pregnancy to help keep them and their babies healthy, but some vaccines, especially live vaccines, aren’t recommended during pregnancy. To help pregnant people navigate maternal vaccination recommendations before pregnancy, through the... Read more »
Fact Sheets, Publications
09.28.21
DOWNLOAD THE ALOPECIA AREATA: DIAGNOSIS AND MANAGEMENT IN PRIMARY CARE FACT SHEET Alopecia areata is an autoimmune disease in which the body’s immune system attacks its own hair follicles. In most cases, hair falls out in small, round patches on the scalp, but hair loss can also occur in eyelashes, eyebrows, and other hair-bearing areas... Read more »
Fact Sheets, Publications
08.18.21
This SWHR fact sheet reviews common symptoms of and risk factors for developing PsA, how PsA presents differently in women, and information on diagnosing and treating PsA.
Fact Sheets, Publications
07.09.21
Check out this SWHR fact sheet to learn more about fibroids and The Stephanie Tubbs Jones Uterine Fibroid Research and Education Act of 2021.
Guides & Toolkits, Publications, Video
06.18.21
SWHR's Endometriosis Video Toolkit features segments on each of the areas covered in the original toolkit.
Fact Sheets, Publications
06.02.21
SWHR created a Migraine Matters fact sheet for people with migraine to share with their friends, family, and coworkers to help inform them about migraine disease.
Guides & Toolkits, Publications
03.19.21
SWHR's Endometriosis Toolkit is designed to empower people of all ages with endometriosis in navigating their care.
Guides & Toolkits, Publications
09.16.20
SWHR’s new Migraine Patient Toolkit is designed to help people with migraine integrate wellness practices into their daily life and offers a starting point for the journey toward living well with migraine.
Guides & Toolkits, Publications
09.16.20
SWHR has created two Migraine Patient Toolkits to assist people with migraine in navigating their care and achieving wellness.
Guides & Toolkits, Publications
07.11.19
SWHR’s toolkit is designed to help patients navigate their care with easy-to-understand information about migraine diagnosis and treatment, as well as tips on interacting with health care providers and health insurance companies to achieve the best possible outcomes.
Fact Sheets, Publications
06.19.18
Approximately 10% of reproductive-age women are living with endometriosis, a painful and chronic condition that can cause lesions, painful periods, and heavy bleeding. Endometriosis can negatively affect a woman's quality of life and productivity.
Guides & Toolkits, Publications
06.12.18
This PowerPoint slide deck by SWHR’s Alzheimer's Disease Network highlights the 12 priority areas for future sex and gender differences research in Alzheimer's disease.
Guides & Toolkits, Publications
06.01.18
This slide deck highlights the impact of urinary incontinence on women, including the high prevalence in women, the stigmatization of the condition, the effects on quality of life, and the economic burden.
Guides & Toolkits, Publications
11.30.17
Nearly 1 in 5 women have sleep apnea, a disorder that affects daytime functioning, but about 9 in 10 women with sleep apnea don't know they have it. This handy guide from SWHR's Sleep Network tells you what you need to know.
Guides & Toolkits, Publications
11.30.17
Though sleep is essential to health and wellbeing, the unique barriers faced by women in maintaining good sleep health are often misunderstood or overlooked, according to SWHR's resource, Women & Sleep: A Guide for Better Health.
Guides & Toolkits, Publications
06.21.11
SWHR and WomenHeart partnered on this 2011 report outlining the top 10 questions regarding women’s heart health.