Endometriosis Toolkit: A Patient Empowerment Guide

For every 10 women in your life, at least one of them likely has endometriosis.

This chronic and often debilitating disease can be difficult to live with, both physically and emotionally. Many women experience significant delays in getting diagnosed and treated, in part because of the societal stigma around menstrual issues. Though there is no cure, there are treatment options that may ease symptoms and improve quality of life.

SWHR’s toolkit is designed to empower individuals with endometriosis in navigating their care.

The toolkit provides easy-to-understand information on menstrual health, guidance on endometriosis diagnosis and treatment, and tips for interacting with your health care provider. The toolkit aims to facilitate productive conversations between patients and health care providers so people with endometriosis can get the care they need.

Download the Endometriosis Toolkit PDF or watch our Endometriosis Video Toolkit.

For every 10 women in your life, at least one of them likely has endometriosis.

This chronic and often debilitating disease can be difficult to live with, both physically and emotionally. Many women experience significant delays in getting diagnosed and treated, in part because of the societal stigma around menstrual issues. Though there is no cure, there are treatment options that may ease symptoms and improve quality of life.

SWHR’s toolkit is designed to empower individuals with endometriosis in navigating their care.

The toolkit provides easy-to-understand information on menstrual health, guidance on endometriosis diagnosis and treatment, and tips for interacting with your health care provider. The toolkit aims to facilitate productive conversations between patients and health care providers so people with endometriosis can get the care they need.

Download the Endometriosis Toolkit PDF or watch our Endometriosis Video Toolkit.

What’s in the Toolkit?

You can access the entire Endometriosis Toolkit above or download these individual toolkit pieces:

For more information, see the Endometriosis Toolkit’s Glossary of Terms and Select References.

The toolkit is a project of SWHR’s Endometriosis and Fibroids Network, a diverse group of researchers, health care providers, patients, and health care thought leaders working to educate and engage society about the burden of these diseases, which significantly impact the lives of the women.


video Toolkit

Check Out Our Endometriosis Video Series

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Thanks to our sponsor for their support of this educational toolkit.