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Virtual Event

April 2024

OADR-ORWH Science Talks: Xist-ing Data: Why Might Autoimmune Diseases Be More Common in Women?

Hosted by NIH Office of Research on Women’s Health

The purpose of the OADR-ORWH Science Talks series is to examine the state of the science in specific areas impacting research on autoimmune disease and women’s health. This session of Science Talks is focused on Xist research and will bring together experts in the field to generate discussion and identify opportunities to advance Xist research as it pertains to autoimmune diseases. Target Audience: This session is designed for a scientific audience with an interest in autoimmune disease research. The event is…

April 23 @ 12:00 pm - 2:00 pm EDT

Alliance Discussion with Dr. Lori Frank, President Of Women’s Health Access Matters (WHAM) And Katie Schubert, President & CEO Of Society For Women’s Health Research (SWHR)

Hosted by Research!America

Women continue to be understudied and underrepresented in health research despite meaningful reforms over the past three decades. Join Research!America on April 25 at noon E.T. for an alliance discussion featuring Katie Schubert, President and CEO of the Society for Women’s Health Research (SWHR), and Lori Frank, President of Women’s Health Access Matters (WHAM). Katie and Lori will discuss actions by the Biden Administration and Congress to confront these persistent challenges. REGISTER   This event is open to the public and free to…

April 25 @ 12:00 pm - 12:45 pm EDT

Breaking Barriers in Alzheimer’s Disease: Perspectives on Early Stage Alzheimer’s

Hosted by SWHR

Approximately two-thirds of Alzheimer’s disease patients are women, as well as more than 60% of their caregivers. Stigma surrounding Alzheimer’s and dementia can cause some women to dismiss symptoms as normal aging or menopausal brain fog and delay talking to their health care provider. Moreover, coverage of screening and diagnostic tests can be difficult and confusing to navigate, also contributing to delays in diagnosing and treating Alzheimer’s.  An early diagnosis is essential for slowing the progression of Alzheimer’s disease, planning…

April 26 @ 12:00 pm - 12:30 pm EDT

Essential Health Care Services Related to Anxiety and Mood Disorders in Women: A Workshop

Hosted by National Academies of Sciences, Engineering, and Medicine

The National Academies of Sciences, Engineering, and Medicine’s Forum on Mental Health and Substance Use Disorders will organize and host a public workshop to identify essential health care services related to anxiety and mood disorders in women. Invited presentations and discussions will be designed to: Identify essential health care services related to anxiety and mood disorders in women; Define essential health care services related to anxiety and mood disorders in women based on currently available evidence; Identify ways to prepare…

April 29 - April 30

Talking All Things Women’s Heart Health

Hosted by SWHR

Heart disease is the number one killer of both women and men annually in the United States. Yet, less than half of women recognize its role as the leading cause of death among women. During this virtual event, SWHR will host a "fireside chat" style conversation with Dr. Stephanie Coulter of The Texas Heart Institute about the current state of cardiovascular disease screening and diagnostics, what barriers might hinder women’s access to care, and potential solutions to overcome those barriers…

April 30 @ 11:00 am - 11:30 am EDT

May 2024

VCU Health of Women 2024 | Emerging Topics in Women’s Health: Autoimmune Disease Challenge

Hosted by SWHR

Join us for the VCU Health of Women Conference 2024 SWHR Pre-conference Symposium! This symposium will discuss the impacts of autoimmune diseases on women’s health across the lifespan, with special emphasis on pregnancy and maternal health, caregiving/parenting.

May 9 @ 12:00 pm - 1:30 pm EDT
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Speakers

Irene O. Aninye, PhD
Chief Science Officer, Society for Women's Health Research
Irene O. Aninye, PhD
Chief Science Officer, Society for Women's Health Research

Dr. Irene Aninye is the Chief Science Officer at the Society for Women’s Health Research, a national nonprofit dedicated to improving women’s health through science, policy, and education. She steers SWHR’s science programs to increase investment in research on biological sex differences and awareness of health conditions and diseases that differently, disproportionately, or exclusively affect women. Prior to SWHR, Aninye led strategy teams for the American Association for the Advancement of Science (AAAS) to build research capacity and competitiveness and evaluate STEM research and training programs for universities and national consortia. Dr. Aninye’s research background in endocrinology and metabolism investigated sex steroid hormone-receptor action in development, reproduction, and disease. She also brings expertise in facilitating scientific and leadership development training for researchers and professionals across all career stages, and service on advisory boards for organizations such as the National Institutes of Health, American Cancer Society, National Health Council, and Endocrine Society USA. A Washington, DC, native, Aninye earned her BS in Biochemistry as a Meyerhoff Scholar at the University of Maryland Baltimore County and a PhD in Molecular and Integrative Physiology from the University of Illinois at Urbana-Champaign. 

Stacie Bell, PhD
Executive Vice President, Lupus Therapeutics
Stacie Bell, PhD
Executive Vice President, Lupus Therapeutics

Stacie is a dynamic leader and researcher with 25+ years of diverse experience in biotechnology, academic, nonprofit and pharma in discovery research, drug and device development, scientific strategy, education and patient centricity with a cross functional focus on clinical development and medical affairs. She has been involved with all phases and functional lines of the pre-clinical research and clinical development process in several therapeutic areas, including infectious diseases, immunology, rheumatology, dermatology, and has worked extensively with the FDA, NIH and NHC. Stacie currently leads Lupus Therapeutics, the clinical affiliate of the Lupus Research Alliance and oversees the LuCIN clinical trial network, a variety of partnerships advancing treatment development in lupus, and the patient engagement and health equity functions for the LRA. She has served in several leadership roles including Chief Scientific & Medical Officer for the National Psoriasis Foundation, on numerous boards and committees, consulted for late-stage discovery and clinical development programs in a variety of settings and has been the therapeutic area representative and program lead for her organizations. Stacie received her doctorate in biochemistry from Vanderbilt University and has secondary training in Clinical Pharmacology and Research. Throughout her career she has been dedicated to optimizing treatment options for unmet needs, promoting education, improving access to care, fostering partnership to progress programs and taking innovative approaches for program strategy.

Estela Mata-Carcamo
President, Looms for Lupus 
Estela Mata-Carcamo
President, Looms for Lupus 

Estela Mata-Carcamo is a tireless advocate for health equity, leading transformative initiatives at the intersection of healthcare, community engagement, and patient empowerment. As the President and Co-founder of Looms for Lupus, she drives awareness and support for lupus, fibromyalgia, and mental health. Her leadership has positively impacted thousands of patients and caregivers through education, advocacy and support.

Estela engages with the community, empowering patients to use their voices, share their stories, and shape policy decisions. She is also an ambassador of hope and co-founder of Mata Advocacy and Support (MAS), an advocacy consulting firm dedicated to making a positive impact in the community.

With 30 years of healthcare experience, Estela bridges connections between all stakeholders: industry and patients alike. Fluent in both English and Spanish, she collaborates globally with entities such as the U.S. Department of Health and Human Services and the U.S. Food and Drug Administration. Estela actively participates in Congresswoman Grace Napolitano’s Mental Health Consortium and serves as Vice-Chair of the Board for the California Chronic Care Coalition.

 

Lindsey Miltenberger, MA
Chief Advocacy Officer, Society for Women's Health Research
Lindsey Miltenberger, MA
Chief Advocacy Officer, Society for Women's Health Research

Miltenberger provides oversight of SWHR’s government relations, communications, and advocacy functions. A member of SWHR’s senior team, she is responsible for helping to drive SWHR’s policy agenda, build relationships with key stakeholders and policymakers, and guide activities to improve women’s health through science, policy, and education.

Previously, Miltenberger served as the assistant director of government affairs for the American Association for Dental Research (AADR), where she was responsible for developing and implementing AADR’s federal policy agenda, spanning federal budget and appropriations issues, international scientific collaboration, scientific workforce matters, and tobacco policy.

Prior to AADR, Miltenberger served as a senior manager for advocacy at AcademyHealth, where she supported efforts to raise the visibility and promote the value of health services and systems research.

Miltenberger received her master’s degree in global communication, with a concentration in public diplomacy, from The George Washington University. She received her ABJ in public relations and her BA in international affairs from the University of Georgia.

JoAnn V. Pinkerton, MD
Mamie A. Jessup Professor of Obstetrics and Gynecology, Division Director of Midlife Health, University of Virginia
JoAnn V. Pinkerton, MD
Mamie A. Jessup Professor of Obstetrics and Gynecology, Division Director of Midlife Health, University of Virginia

JoAnn Pinkerton is the Mamie A. Jessup Professor of Obstetrics and Gynecology, Division Director of Midlife Health at the University of Virginia, emeritus Executive Director and Past President of The Menopause Society, Certified Menopause Practitioner, American College of Obstetricians and Gynecologists Fellow and past president of the South Atlantic Association of Obstetrics and Gynecology.

She was recognized in 2021 and 2022 by PubMed as one of the top three in the world for menopause publications. Her awards: 2022 SAAOG Lifetime Achievement, 2019 UVA Master Clinician, Castle Connolly Exceptional Women in Medicine, UVA Sharon Hostler 2013 Women in Leadership, BEST DOCTORs, TOP DOCTORS in America, Top 1% by America’s Most Honored Professionals, and American Library Association Award for Understanding Midlife Health. She has 172 peer-reviewed publications, 30 invited papers, 18 invited chapters, principal investigator for over 30 clinical trials, recently for elinzanetant ( NK1, 3) dual neurokinin receptor antagonist for hot flashes.

She is the founder and division director for Midlife Health, which specializes in caring for women 40 and beyond. It offers outstanding, highly rated, evidence-driven expert care, serves as a site for medical and graduate medical education, conducts national clinical research, and is active within the community.


Sponsor

Support for this event has been provided by Johnson & Johnson. SWHR maintains independence and editorial control over program development, content, and work products.