Endometriosis Toolkit: A Guide For Teens


Published 1/23/24
Endometriosis Teen Toolkit

Many girls have irregular bleeding and experience unusual pains during the first two years of their period, before their cycles become more regular (happening every 4–5 weeks). However, extremely painful periods are not normal.  

If your periods are so painful that you are missing school and social events, or your pain medication isn’t working well, it is important to talk to a trusted adult or a health care provider about your experience.

One potential cause for frequent and severe pain during and between periods is endometriosis—a chronic gynecological disease in which tissue that resembles the lining of the uterus (the endometrium) grows outside the uterus where it does not belong.

The Society for Women’s Health Research (SWHR) created the Endometriosis Toolkit: A Guide For Teens to empower teenagers who have menstrual health questions or are living with endometriosis to better understand their health and navigate their care.

Download Toolkit

¡El Kit de Herramientas para la Endometriosis también está disponible en español!

What’s in the Endometriosis Toolkit: A Guide For Teens?

You can access the entire Endometriosis Toolkit: A Guide For Teens above or download these individual toolkit pieces:

Understanding Your Pelvic Pain

Diagnosing & Treating Endometriosis in Teens

Let’s Talk Endometriosis

Health Visit Worksheet for Teens

References & Resources

The toolkit is a project of the SWHR Endometriosis Education Working Group – a diverse group of researchers, health care providers, patient advocates, and policy stakeholders working to educate and engage society about the burden of endometriosis and its impact on the lives of women.

Explore the Endometriosis Toolkit: A Patient Empowerment Guide

This broader endometriosis toolkit provides easy-to-understand information on menstrual health, guidance on endometriosis diagnosis and treatment, and tips for interacting with your health care provider for all women.

Explore the Toolkit

This document is intended to serve as an educational and informative resource and is not intended or implied to serve as a substitute for medical or professional advice. The Society for Women’s Health Research does not make medical, diagnosis, or treatment recommendations, nor does it endorse or promote specific screening or diagnostic tests. Patients and consumers should confirm information and consult a professional health care provider to determine individual needs. The Society will not be liable for any direct, indirect, or other damages arising therefrom.

This material was created by the Society for Women’s Health Research (SWHR) and is intended to serve as a public educational and informative resource. This material may be cited or shared on external channels, websites, and blogs, with attribution given to SWHR, or printed and displayed in its original formatted version. SWHR encourages the sharing and reposting of its content in order to spread awareness around women’s health issues. For specific questions about sharing SWHR content, please reach out to communications@swhr.org.


Support for this educational program has been provided by Sumitomo Pharma. SWHR maintains independence and editorial control over program development, content, and work products.

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