SWHR is dedicated to improving women’s health through science, policy, and education. In addition to identifying scientific knowledge and policy gaps to advance women’s health care and research, understanding and sharing women’s individual experiences and journeys can help us better inform providers and policy decision makers on critical gaps in women’s health.
Whether you are a patient or a caregiver for a family member, including a parent, spouse, child, or friend, SWHR wants to hear your personal health journey! Stories shared with SWHR may inform our resources and be shared on our website and social media platforms.
Your story is powerful – to researchers, health care providers, policymakers, and importantly, other women. SWHR wants to use the power of your story to share the real-life impact of different diseases, conditions, and life stages with the people who need to hear it most.
Please note, your story will not be used to promote or advocate for a specific company, product, or medication.
To patients: If you feel that something is wrong, listen to your intuition, and keep searching until you find doctors who can help.
My advice to other women is simple: trust your body, ask questions, seek second opinions & never minimize your own discomfort.
I was diagnosed with stage 4 endometriosis, a severe form of the disease that had spread beyond the reproductive organs and affected other parts of my body.
Women should not have to struggle to be heard or fight to receive accurate care. Greater awareness, research, and understanding of conditions like PMDD are essential to improving outcomes for those affected.
It has been a rough journey since I was young, and I felt like I was not taken seriously. I knew that one day, if I kept trying, I would find the doctor who would believe me.
We need to do better for women. We need to educate physicians.
Heart disease remains the leading cause of death among women and men, but many people still think of heart disease […]
My hope is for more clarity on any long-term side effects – and for doctors, patients, researchers, and funders to support this much needed research so that other women can possibly avoid the pain I have experienced, both physical and mental, which also affects their partners, families, friends and colleagues who care about them.
SWHR’s Women’s Health Perspective series includes firsthand accounts of individuals’ personal health care and/or caregiving experiences. The views expressed here are those of the individuals and not of SWHR. SWHR does not make medical, diagnosis, or treatment recommendations. Patients and consumers should consult a professional health care provider to determine individual needs.