woman with pelvic pain sitting in her bed

Endometriosis is a chronic gynecological disease in which tissue that resembles that in the lining of the uterus (the endometrium) grows outside the uterus where it does not belong. This can lead to the development of lesions, pelvic pain, heavy or irregular periods, and other symptoms. Endometriosis affects an estimated one in 10 women in the United States, and can develop in any girl or woman after the onset of menstruation, although it is most commonly diagnosed in women in their 30s and 40s.

It is common for individuals living with endometriosis to face challenges along their path to diagnosis, including physical, emotional, and financial burdens. Endometriosis also has a significant influence on infertility in women. Moreover, stigma surrounding pain and menstrual issues in women have limited scientific innovation and public awareness for endometriosis and related gynecologic health conditions.

Endometriosis is part of the SWHR Gynecologic Health Network, which engages the following focus areas: Endometriosis, Polycystic Ovary Syndrome, Urology, and Uterine Fibroids.

Program Goals

  • Review the state of science and explore strategies to address knowledge gaps and unmet needs related to the research, diagnosis, and treatment of endometriosis in women across the lifespan
  • Identify opportunities to leverage innovation, increase access to equitable care, and reduce disparities and disease burden for women living with endometriosis
  • Promote science-based health care policies around endometriosis to improve patient outcomes
  • Develop materials to expand education, raise awareness, and remove stigma about endometriosis for patients, health care providers, and policy stakeholders

Facts about Endometriosis

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6.5 million

women between ages 15-44 in the United States have endometriosis

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2 of 3

people diagnosed with endometriosis report experiencing symptoms as an adolescent

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6.3 hours lost

in work productivity per week is experienced by women with endometrioses

More about Endometriosis