Endometriosis Toolkit: A Patient Empowerment Guide


Published 3/19/21

For every 10 women in your life, at least one of them likely has endometriosis.

This chronic and often debilitating disease can be difficult to live with, both physically and emotionally. Many women experience significant delays in getting diagnosed and treated, in part because of the societal stigma around menstrual issues. Though there is no cure, there are treatment options that may ease symptoms and improve quality of life.

SWHR’s toolkit is designed to empower individuals with endometriosis in navigating their care.

The toolkit provides easy-to-understand information on menstrual health, guidance on endometriosis diagnosis and treatment, and tips for interacting with your health care provider. The toolkit aims to facilitate productive conversations between patients and health care providers so people with endometriosis can get the care they need.

Download Toolkit

Watch Video Toolkit

What’s in the Toolkit?

You can access the entire Endometriosis Toolkit above or download these individual toolkit pieces:

What Is Endometriosis and Who Does It Affect?

Menstrual Health and Stigma

Diagnosing Endometriosis

Treatments for Endometriosis

Endometriosis in Teens

Endometriosis and Fertility

Endometriosis and Menopause

Wellness Tips for Living with Endo

Doctor’s Visit Worksheet

For more information, see the Endometriosis Toolkit’s Glossary of Terms and Select References.

The toolkit is a project of SWHR’s Endometriosis and Fibroids Network, a diverse group of researchers, health care providers, patients, and health care thought leaders working to educate and engage society about the burden of these diseases, which significantly impact the lives of the women.

Video Toolkit

Check Out Our Endometriosis Video Series

Watch Now

Endometriosis Toolkit Cover

This document is intended to serve as an educational and informative resource and is not intended or implied to serve as a substitute for medical or professional advice. The Society for Women’s Health Research does not make medical, diagnosis, or treatment recommendations, nor does it endorse or promote specific screening or diagnostic tests. Patients and consumers should confirm information and consult a professional health care provider to determine individual needs. The Society will not be liable for any direct, indirect, or other damages arising therefrom.

This material was created by the Society for Women’s Health Research (SWHR) and is intended to serve as a public educational and informative resource. This material may be cited or shared on external channels, websites, and blogs, with attribution given to SWHR, or printed and displayed in its original formatted version. SWHR encourages the sharing and reposting of its content in order to spread awareness around women’s health issues. For specific questions about sharing SWHR content, please reach out to communications@swhr.org.


Thanks to our sponsor for their support of this educational toolkit.

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