Fact Sheets
Narcolepsy is a chronic disorder that is often misinterpreted in children as laziness or lack of motivation. Teachers can mistake symptoms as behavioral or cognitive problems, and many adolescents with narcolepsy report difficulty performing in school.
Narcolepsy can have a significant impact on a child’s academic life, so communication and support from schools are critical. The Society for Women’s Health Research (SWHR) created the Supporting Children with Narcolepsy at School Fact Sheet to support narcolepsy caregivers as they navigate reasonable accommodations and care for their families.
Your story can also help educate and inform other women who may be going through a similar experience.
SWHR is asking women to share their personal heart health journeys, to be posted on the SWHR website. In addition to patient stories, SWHR is interested in the stories of those who serve as caregiver for a family member (parent, spouse, child, etc.). Your story is powerful and we hope to share with policymakers, researchers, providers and most importantly, other women.
Midlife represents about 63% of women in the United States, according to data from the U.S. Census Bureau. Yet, health research focused on this critical window for healthy aging interventions in women has been understudied.
During the 5th Annual Scientific Conference of SBSM earlier this month, SWHR held the symposium "Addressing the Intersection of Narcolepsy and Maternal Health Care."
This November, during Family Caregivers Month and ahead of Giving Tuesday on November 28, SWHR is shining a light on women caregivers and showing our support for the role that they play in society.
Listen to Ashley’s story about the challenges she faced and decisions she made to manage living with narcolepsy and protect herself and her baby during pregnancy.
This material was created by the Society for Women’s Health Research (SWHR) and is intended to serve as a public educational and informative resource. This material may be cited or shared on external channels, websites, and blogs, with attribution given to SWHR, or printed and displayed in its original formatted version. SWHR encourages the sharing and reposting of its content in order to spread awareness around women’s health issues. For specific questions about sharing SWHR content, please reach out to [email protected].
SWHR’s Narcolepsy Program is supported by educational sponsorship from Harmony Biosciences. SWHR maintains independence and editorial control over program development, content, and work products.