SWHR Urges ICER to Use Progressive Modeling to Assess Endometriosis Treatments

Policy Engagement

Published 2/1/18

SWHR submitted comments to the Institute for Clinical and Economic Review (ICER) in advance of ICER’s assessment of the comparative clinical effectiveness of new treatments for endometriosis. SWHR emphasized the importance of using progressive modeling techniques to properly assess the indirect costs associated with the stigma and societal burden of endometriosis. As a thought leader in eliminating imbalances in care for women, SWHR offered to be a resource during ICER’s analysis on endometriosis and any other chronic conditions affecting women.

The comments highlight that, on average, women do not receive an endometriosis diagnosis until 6.7 years after first experiencing symptoms or they are misdiagnosed. Stigma and lack of education around endometriosis can lead to delated diagnosis and inadequate or inappropriate treatment. In addition, endometriosis can be accompanied by co-morbid conditions such as depression, anxiety, autoimmune and endocrine disorders, and migraine. SWHR encouraged ICER to take into account these factors, which are often overlooked or difficult to study.

Learn more about endometriosis through the work of SWHR’s Interdisciplinary Network on Endometriosis and Fibroids.