Uterine Fibroids Toolkit: A Patient Empowerment Guide

While an estimated 26 million women ages 15-50 in United States have uterine fibroids, these statistics about fibroids are often underestimated. 

Uterine fibroids (leiomyomas) are tumors made of smooth muscle and fibrous connective tissue that arise from the uterus and are one of the most common gynecological conditions nationwide.

Fibroids can develop in any girl or woman after the onset of her menstrual cycle. Although fibroids are most commonly diagnosed in individuals in their 30s and 40s, they can occur in adolescents and postmenopausal women, particularly those using hormone therapy. Fibroids tend to increase during the reproductive years and then shrink after menopause. These growths are non-malignant and are not associated with an increased risk of uterine cancer, but they can result in mild to severe side effects and can affect one’s quality of life.

SWHR’s toolkit is designed to empower individuals with uterine fibroids in navigating their care.

The toolkit provides easy-to-understand information on gynecological health, guidance on uterine fibroid diagnosis and treatment, and tips for interacting with your health care provider. The toolkit aims to facilitate productive conversations between patients and health care providers so people with uterine fibroids can get the care they need.

DOWNLOAD THE UTERINE FIBROIDS TOOLKIT

While an estimated 26 million women ages 15-50 in United States have uterine fibroids, these statistics about fibroids are often underestimated. 

Uterine fibroids (leiomyomas) are tumors made of smooth muscle and fibrous connective tissue that arise from the uterus and are one of the most common gynecological conditions nationwide.

Fibroids can develop in any girl or woman after the onset of her menstrual cycle. Although fibroids are most commonly diagnosed in individuals in their 30s and 40s, they can occur in adolescents and postmenopausal women, particularly those using hormone therapy. Fibroids tend to increase during the reproductive years and then shrink after menopause. These growths are non-malignant and are not associated with an increased risk of uterine cancer, but they can result in mild to severe side effects and can affect one’s quality of life.

SWHR’s toolkit is designed to empower individuals with uterine fibroids in navigating their care.

The toolkit provides easy-to-understand information on gynecological health, guidance on uterine fibroid diagnosis and treatment, and tips for interacting with your health care provider. The toolkit aims to facilitate productive conversations between patients and health care providers so people with uterine fibroids can get the care they need.

DOWNLOAD THE UTERINE FIBROIDS TOOLKIT

What’s in the Toolkit?

You can access the entire Uterine Fibroids Toolkit above or download these individual toolkit pieces:

For more information, see the Uterine Fibroids Toolkit’s Glossary, Quick Links, and References.

The toolkit is a project of SWHR’s Uterine Fibroids Program, which convenes a diverse group of researchers, health care providers, patients, and health care thought leaders working to educate and engage society about the burden of fibroids, which significantly impact the lives of the women.

More from SWHR about Fibroids

Blog Post
Infertility and Women’s Health Conditions: The Physician Who May be Able to Help
Guest blog by the Society of Interventional Radiology Many women struggle with infertility or with other life-altering conditions of the pelvis, such as uterine fibroids. Oftentimes, they don’t feel heard by their doctors, or they’re told they have very few options for treatment. Dealing with these issues can be heartbreaking, and many women begin to... Read more »
Event
Focus on Fibroids Series: Empowering Women through Personal Journey-telling
Uterine fibroids (leiomyomas) are non-malignant growths of the uterus and one of the most common gynecological conditions nationwide. A growing and overlooked public health issue, fibroids affect approximately 26 million American women between the ages 15 to 50, however fibroids can affect patients across life stages from adolescence to post-menopause. With a wide array of... Read more »
December 6, 2021 @ 12:00 pm - 1:00 pm EST
Event
Focus on Fibroids Series: Tools to Navigate Optimal Care
Uterine fibroids (leiomyomas) are non-malignant growths of the uterus and one of the most common gynecological conditions nationwide. A growing and overlooked public health issue, fibroids affect approximately 26 million American women between the ages 15 to 50, however fibroids can affect patients across life stages from adolescence to post-menopause. With a wide array of... Read more »
November 29, 2021 @ 3:00 pm - 4:00 pm EST

SWHR thanks AbbVie, Myovant | Pfizer, and Roche for their support of this educational work. 

            

This material was created by the Society for Women’s Health Research (SWHR) and is intended to serve as a public educational and informative resource. This material may be cited or shared on external channels, websites, and blogs, with attribution given to SWHR, or printed and displayed in its original formatted version. SWHR encourages the sharing and reposting of its content in order to spread awareness around women’s health issues. For specific questions about sharing SWHR content, please reach out to communications@swhr.org