- This event has passed.
Endometriosis Awareness: Empowering Patients
March 16, 2021 @ 3:30 pm - 4:30 pm EDT
Endometriosis is a chronic gynecological disease that may cause pelvic pain, pain between periods, back pain, pain with sex, infertility, and other symptoms, severely impacting a woman’s quality of life. An estimated 200 million individuals worldwide are living with endometriosis. However, societal stigma around menstruation can prevent women from discussing life-disrupting, period-related symptoms, leading to delays in diagnosis and treatment for endometriosis.
This SWHR webinar provides valuable insight for both patients and health care providers on opportunities to empower people living with endometriosis.
Hear endometriosis experts and a patient advocate speak about:
-
- the burden of endometriosis and menstrual stigma
- diagnosis and treatment options
- the patient journey and tips for living well with endometriosis
Learn more about this disease and the work of SWHR’s Endometriosis and Fibroids Network.
Panelists
Sawsan As-Sanie, MD, MPH
Sawsan As-Sanie, MD, MPH
Dr. As-Sanie is an Associate Professor, Co-Chief of Gynecology, and the Director of the Minimally Invasive Gynecologic Surgery Program and Fellowship. She is a Past-President of the International Pelvic Pain Society (IPPS), is an elected member of the American Gynecological & Obstetrical Society (AGOS), and the Vice-Chair of the American Society for Reproductive Medicine (ASRM) Endometriosis Special Interest Group. She is also a member of the Society of Women’s Health Research Interdisciplinary Network on Female Pelvic Health, and serves on the editorial board of the Journal of Minimally Invasive Gynecology. Dr. As-Sanie is an NIH-funded clinician scientist and has published and lectured widely on the mechanisms involved in the initiation and maintenance of chronic pelvic pain and post-surgical pain, with a focus on endometriosis-associated pelvic pain.
Tara Hilton
Tara Hilton
Ms. Hilton is an endometriosis activist, patient advocate and the founder of The Yellow Cape, a non-profit with a mission to change the way endometriosis affects our communities. She was a guest speaker at the first annual, “Worldwide EndoMarch” and went on to hold the roles, “Delaware Chapter President” and “Special Government Liason”, with the EndoMarch Team. Ms. Hilton wrote a proclamation for endometriosis which Governor Markell traveled to sign in person, publicly declaring endometriosis a women’s health crisis. Some of her other accomplishments include creating the first endometriosis scholarship, establishing the first monthly endometriosis support group, and most recently publishing an updated endometriosis brochure which targets early detection. Over the years, her community work has earned her awards such as: “Endo Activist of the Year” and “Endo Hero of the Year” along with other recognitions. With almost 30 years experience in battling endometriosis and self-advocating, Ms. Hilton uses the lessons learned to provide education, support and resources to others enduring the endometriosis journey.
Stacey Missmer, ScD
Stacey Missmer, ScD
Dr. Missmer is currently Immediate Past Chair of the Endometriosis Special Interest Group (EndoSIG) for the American Society of Reproductive Medicine (ASRM), and International Advisor for the European Society of Human Reproduction and Embryology (ESHRE) Special Interest Group for Endometriosis and Endometrial Disorders (SIG-EED). She co-founded the Boston Center for Endometriosis in 2012 as the Scientific Director, where she designed and leads the Women’s Health Study: from Adolescence to Adulthood (A2A). That same year she co-launched the World Endometriosis Research Foundation (WERF) Endometriosis Phenome and Biobanking Harmonization Project (EPHect), which provides standardized tools for endometriosis-focused data and biologic sample collection. Much of Dr. Missmer’s research has focused on identifying factors that affect the risk for and consequences of endometriosis, particularly among young women and girls. Dr. Missmer received her Bachelor’s degree in biology from Lehigh University and her Master and Doctor of Science (ScD) degrees in epidemiology from Harvard School of Public Health.
Sponsor
