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Focus on Fibroids Series: Tools to Navigate Optimal Care

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November 29, 2021 @ 3:00 pm - 4:00 pm EST

Uterine fibroids (leiomyomas) are non-malignant growths of the uterus and one of the most common gynecological conditions nationwide. A growing and overlooked public health issue, fibroids affect approximately 26 million American women between the ages 15 to 50, however fibroids can affect patients across life stages from adolescence to post-menopause.

With a wide array of common symptoms, such as severe and irregular menstrual bleeding, pelvic and pain back, bladder or bowel dysfunction, and challenges with fertility, fibroids can result in significant health issues. Further, women with fibroids can experience delays in diagnosis due to stigma around menstrual disorders and normalization of symptoms by both patients and healthcare providers alike.

Diagnosing and treating uterine fibroids often requires a personalized approach that combines an assessment of a patient’s values and needs with medical treatments and wellness strategies to help each individual maintain a full and high quality of life. The Society for Women’s Health Research has created educational materials to increase awareness and understanding of uterine fibroids and help individuals with uterine fibroids navigate their care.

SWHR hosted this webinar as part of its Focus on Fibroids Series: Empowering Women to Live Well with Uterine Fibroids to share educational information about uterine fibroids, including diagnosis, treatment options, access to care, and disparities, as well as highlight the experiences of women living with fibroids.

The SWHR Focus on Fibroids series includes:

Check out the new Uterine Fibroids Toolkit: A Patient Empowerment Guide to learn more about risks and treatments.

Follow along on social media at #SWHRtalksFibroids.

Details

Organizer

Goals

  • Discuss the impacts of uterine fibroids on women’s health, including disparities and stigma
  • Provide a holistic overview of treatment options for patients and key considerations for disease management
  • Highlight information and wellness strategies from SWHR’s uterine fibroids patient toolkit
  • Increase visibility of the patient experience, emphasizing ways to empower patients and improve quality of care and general wellbeing

Are you interested in seeing more of this type of educational programming on women’s health from SWHR?

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Panelists

Nkem Osian, MPH

Public Health Analyst, Federal Office of Rural Health Policy, Department of Health and Human Services; Director of Partnerships, The White Dress Project

Nkem Osian, MPH

Public Health Analyst, Federal Office of Rural Health Policy, Department of Health and Human Services; Director of Partnerships, The White Dress Project

Nkem is a Public Health Analyst in the Federal Office of Rural Health Policy at the United States Department of Health and Human Services where she analyzes health programs in rural communities. In this role, she ensures that rural communities have access to quality treatment and care.

In addition, she is a patient advocate and serves as the Director of Partnerships for an organization that is near and dear to her heart, The White Dress Project (WDP). The WDP is an organization focused on raising national awareness about the uterine fibroid epidemic and filling in the gaps in care, education, and research. Nkem struggles with fibroids and shares her story to help break down the walls of silence around this common gynecological condition.

James Segars, MD

Professor and Division Director, Department of Gynecology and Obstetrics, Johns Hopkins University School of Medicine 

James Segars, MD

Professor and Division Director, Department of Gynecology and Obstetrics, Johns Hopkins University School of Medicine 

James Segars is the Howard and Georgeanna Seegar Jones Professor of Gynecology and Obstetrics and Director, Division of Women’s Health Research at Johns Hopkins. A major focus of his research has explored the molecular mechanisms responsible for reproductive diseases, including uterine fibroids, endometriosis, PCOS, and infertility. He graduated from Duke University and Duke University School of Medicine followed by a residency in OB/GYN and a fellowship Reproductive Endocrinology and Infertility at Vanderbilt University. After clinical training, he completed 3 years of post-doctoral training at the NIH as an RSDP Scholar. Dr. Segars was recruited to the intramural program at NICHD for 20 years before moving to Johns Hopkins. At Johns Hopkins, his division is engaged in several NIH-funded clinical and translational research studies of fibroids, endometriosis, and infertility. Dr. Segars has published over 230 research papers and serves on several editorial boards. He has received several awards for mentorship and research. 

Kedra Wallace, PhD

Associate Professor, University of Mississippi Medical Center Department of Obstetrics and Gynecology

Kedra Wallace, PhD

Associate Professor, University of Mississippi Medical Center Department of Obstetrics and Gynecology

Kedra Wallace, PhD, is an associate professor in the University of Mississippi Medical Center Department of Obstetrics and Gynecology. She holds a joint appointment in the Department of Neurobiology and Anatomical Sciences, where she also serves as an associate professor. Her areas of research include uterine fibroids, high-risk pregnancy, and anxiety and depression in women. She currently serves as Director of Research within the Obstetrics and Gynecology department and Program Director for the Masters of Science in Clinical Investigation Graduate program at her University.

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