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Psoriatic Arthritis: More than Just Sore Joints

August 10 - September 11

This event has been postponed and will take place in later in August or September. Stay tuned for updates 

More than 8 million individuals in the United States have psoriasis. This chronic inflammatory skin disease is characterized by patches of red or discolored and irritated skin that are often covered by flaky white or gray scales, depending on the skin type. An estimated 10-30% of people with psoriasis also develop psoriatic arthritis (PsA) – a type of inflammatory arthritis linked to psoriasis.

Approximately 40% of people with PsA report significant impacts on their everyday life, and despite PsA occurring equally in women and men, women often report experiencing more fatigue and functional limitations. Women are also less likely to respond to some treatments and achieve remission than men.

Patients are not often assessed for joint pain during psoriasis care visits, delaying a timely diagnosis by years, and potentially resulting in irreversible joint damage. Psoriasis (and subsequent PsA) is also under-diagnosed among African Americans and other individuals with skin of color due to differences in clinical presentation.

SWHR is hosting a series of webinars to share educational information about the impact of psoriatic arthritis on women’s health. The events will discuss how to improve health outcomes through recognizing and addressing symptoms, comorbidities, treatment options, and barriers to accessing quality care, while highlighting the diverse experiences of women across the lifespan.

The SWHR Psoriatic Arthritis series includes:

  • Psoriatic Arthritis: More than Just Sore Joints (August 2022)
  • Psoriatic Arthritis: A Woman’s Toolkit to Soar Above the Pain (November 2022)

REGISTER

Details

Start:
August 10
End:
September 11
Event Categories:
,
Website:
https://swhr-org.zoom.us/webinar/register/WN_L03qIvR5RNq73HgVN1OdEg

Organizer

SWHR

Goals:

  • Discuss the impacts of psoriatic arthritis on women’s health, including disparities and stigma
  • Highlight the diversity of experiences for women living with psoriatic arthritis
  • Emphasize ways to empower women and improve their quality of care and general wellbeing

Panelists

Diane Talbert
Founder, Power Beyond Psoriasis
Diane Talbert
Founder, Power Beyond Psoriasis

Diane Talbert is a blogger, patient advocate and speaker for psoriasis, psoriatic arthritis, and fibromyalgia. She presently works with Health Union, Patient Rising, Healthline, Bezzy PsA, Bezzy PsO and Creaky Joints. She has been featured in WebMD, Sharecare, The Mighty, Medium, Arthritis Today, Everyday Health, Arthritis Foundation, Breakthrough Crew, Black Doctor. Org, New York Times, and Health Central.

She has spoken in front of the FDA about living with psoriasis and psoriatic arthritis and was asked to be on a panel with several dermatologist as a patient advocate. She is also part of the “The Fibromyalgia Pain Chronicles” run by Kristal Kent where she has done several videos. She has worked with LYFE bulb, Psoriasis for Kopa and NPAC (National Pain Advocacy Center). She just finished a Advocacy Master though Patients Rising run by Terry Wilcox. Diane was the 2020 Hero of Hope recipients for the International Pain Foundation run by Barby and Ken Ingle. She goes to Capitol Hill yearly to lobby and frequently speaks at Town Hall meetings. She was just feature in the U.S. Pain Foundation Invisible Project. Diane has been an active advocate for this disease for decades now. She ran a support group in the Maryland, DC, and Virginia area for ten years. She is also a volunteer for several organizations and vows to help find a cure for psoriasis and psoriatic arthritis. Diane serves on multiple advocacy boards and committees.

She loves being a wife, mother, and grandmother. She has a great husband (Alvin) who is her number one supporter. She has two sons and four grandchildren. Diane loves reading, writing, and traveling. Diane has had severe psoriasis since the age of five (1968). She was covered over 70% of her body for the first 40 years of her life. She has had psoriatic arthritis for 25 years, but just got diagnosis 15 years ago. She is presently seeing a doctor for fibromyalgia, rheumatologist for psoriatic arthritis and a dermatologist for psoriasis. Her goal is to stop the stigma associated with these diseases.

Stacie Bell, PhD
President & CEO, Global Nutrition Project
Stacie Bell, PhD
President & CEO, Global Nutrition Project

Stacie Bell, PhD, is the Executive Vice President of Research and Global Affairs at Opsis Health/Global Nutrition Project. Dr. Bell is a dynamic leader, connector, and researcher with 25+ years of diverse biotechnology, nonprofit and pharma experience. In addition to leading cross-functional approaches for successful programs and clinical trials, Stacie is a skilled collaborator with extensive experience in clinical research, medical affairs and development, working closely with the FDA, NHC, NIH, and CDC, among others.

 

Sponsor

SWHR’s Psoriatic Arthritis Program is supported by an educational sponsorship from by Eli Lilly & Company. SWHR maintains editorial control and independence over educational content.