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Webinar: Patient Organizations as Research and Data Partners

January 31, 2020 @ 12:00 pm - 1:00 pm EST

Clinical innovation is rapidly becoming more patient-centric and data-rich. An explosion of data has opened new opportunities to capture a fuller patient experience. In this webinar, FasterCures will share some of the findings from its recent “Acceleration Lab,” which sought to identify effective ways for research organizations of all types, including research data networks, to partner with patient organizations that can bring patients’ perspective, participation, and data to the table. You will also hear from practitioners partnering effectively around patient-generated heath data about the promise and challenges.

Register

Speakers

Kristin Schneeman, Director, FasterCures
Valerie Barton, Senior Advisor, FasterCures
Seth Ginsberg, Co-Founder and Chairman, Global Healthy Living Foundation
Michael Hund, CEO, EB Research Partnership
Todd Sherer, CEO, The Michael J. Fox Foundation for Parkinson’s Research
Please register, and share with colleagues who may be interested in this critically important topic.

Details

Date:
January 31, 2020
Time:
12:00 pm - 1:00 pm EST
Event Categories:
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Organizer

FasterCures
Email:
FasterCures@milkeninstitute.org
Website:
https://www.fastercures.org/