Endometriosis Advocacy Toolkit

Guides & Toolkits

Published 7/5/24

Endometriosis is a common chronic disease in which tissue that resembles the lining of the uterus (the endometrium) grows outside the uterus where it doesn’t belong, leading to lesions, pelvic pain, and other symptoms.

Despite its prevalence, the exact cause of endometriosis is still unknown, and research into endometriosis has been underfunded and under prioritized. In 2022, $27 million (0.082%) of the National Institutes of Health (NIH) research budget supported endometriosis, averaging $2 per patient.

This toolkit was created to support endometriosis patients, patient advocates, caregivers, researchers, clinicians, and general women’s health advocates in reaching out to their congressional representatives and asking for increased funding for endometriosis research and care.

Download Advocacy Toolkit

What is the Endometriosis CARE ACT?

The Endometriosis Coverage, Awareness, Research, and Education (CARE) Act seeks to advance endometriosis research, expand access to treatment, and improve public awareness of endometriosis. Learn more and ask your representatives to support the Endometriosis CARE ACT in the Endometriosis Advocacy Toolkit.

What is the DoD Peer Reviewed Medical Research Program?

The Peer Reviewed Medical Research Program (PRMRP) supports research “with an underlying goal of enhancing the health, care, and well-being of military Service members, Veterans, retirees, and their family members.” The program is funded through congressional appropriations, and the topic areas funded are determined by the Senate through the Defense Appropriations Act. Learn more about the DoD Peer Reviewed Medical Research Program in the Endometriosis Advocacy Toolkit.

Thank you to our partners on this work, including Endo What?, Endo Black, Inc., Endometriosis Foundation of America, and The Endo Co.