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Read the Roundtable Summary
The objectives of the SWHR Narcolepsy Roundtable are to:
- Review the science and health care landscape and develop strategies to address knowledge gaps and unmet needs related to the research, diagnosis, and treatment of narcolepsy in women across the lifespan;
- Identify opportunities to leverage innovation and increase access to equitable care, and reduce disparities and disease burden for women living with narcolepsy;
- Promote science-based health care policies around narcolepsy to improve patient outcomes; and
- Develop materials to expand education, raise awareness, and remove stigma about narcolepsy for women, health care providers, employers, and policy stakeholders.
Christina Brundage, Patient Advisory and Advocacy Council, Hypersomnia Foundation
Monica Gow, MPA, Founder and Executive Director, Wake Up Narcolepsy
Michael A. Grandner, PhD, Associate Professor, Department of Psychiatry, University of Arizona
Astrid Homan, MBA, Freelance Translator and Patient Advocate
Vidya Krishnan, MD, MHS, Associate Professor, School of Medicine, Case Western Reserve University, MetroHealth Campus
Clete A. Kushida, MD, PhD, Professor of Psychiatry and Behavioral Sciences, Stanford University
Anne Marie Morse, DO, Director, Child Neurology and Pediatric Sleep Medicine, Geisinger Commonwealth School of Medicine
Jason Ong, PhD, Director of Behavioral Sleep Medicine, Nox Health
Quentin Rodney Regestein, MD, Associate Professor of Psychiatry, Harvard Medical School
David Shaha, MD, Sleep Lab Director, University of Iowa Hospitals and Clinics
Tove Maren Stakkestad, Writer of Mama in the Now, and Patient Advocate
Alyssa Walker, Patient Advocate
Christine Won, MD, MSc, BA, Medical Director, Yale Centers for Sleep Medicine
Rochelle Zak, MD, Associate Professor, Medicine, University of California, San Francisco Health
SWHR’s Narcolepsy Program is supported by an educational sponsorship from Avadel Pharmaceuticals. SWHR maintains editorial control and independence over educational content.