Jenifer Waldrop

Jenifer Waldrop is a visionary leader in rare disease advocacy, championing health equity, and ensuring every patient’s story shapes the future of care. As Executive Director of the Rare Disease Diversity Coalition (RDDC), a program of the Black Women’s Health Imperative (BWHI), a role she has held since October 2022, she leads transformative efforts to expand access, representation, and trust across diagnostics, clinical research, and treatment pathways. Jenifer’s career reflects a deep commitment to collaboration, from her time at the American Cancer Society to her tenure at for-profit organizations. She forges powerful partnerships among patient communities, industry innovators, and government leaders. Guided by a human‑centered approach, she amplifies marginalized voices and inspires collective action, while mobilizing diverse networks to drive awareness, unlock opportunity, and build a more equitable healthcare ecosystem for all.