- This event has passed.
The State of Research and Care for Endometriosis
April 10, 2018
An estimated 10% of reproductive-age women are living with endometriosis, a condition that causes symptoms such as painful periods and heavy bleeding. However, the normalization of women’s pain and the stigmatization of menstrual issues have led to a lack of scientific innovation and public awareness. In April 2018, SWHR brought together a group of patients, clinicians, researchers and other relevant stakeholders for a roundtable meeting to identify unmet needs and knowledge gaps in endometriosis. Following the meeting, SWHR hosted a public panel discussion to raise awareness about the disease and bring attention to issues related to a woman’s diagnosis, treatment, and access to care.
Roundtable participants authored an expert review, Assessing Research Gap and Unmet Needs in Endometriosis, published in the August 2019 issue of the American Journal of Obstetrics & Gynecology. This work laid the foundation for SWHR’s Network on Endometriosis and Fibroids.
Objectives
- Review the state of the science regarding endometriosis
- Identify knowledge gaps in research, treatment and care
- Determine steps for overcoming these gaps
Roundtable Participants
- Damian P. Alagia III, MD, Quest Diagnostics
- Sawsan (Suzie) As-Sanie, MD, University of Michigan Endometriosis Center
- Rebecca Black, patient advocate
- Linda Giudice, MD, PhD, University of California, San Francisco
- Tanika Gray, White Dress Project
- Jhumka Gupta, ScD, George Mason University
- Lisa Halvorson, MD, National Institute of Child Health and Human Development (NICHD)
- Marc Laufer, MD, Harvard Medical School, Boston Center for Endometriosis
- Alexandra Milspaw, PhD, LPC, 4Directions Counseling
- Stacey Missmer, ScD, Michigan State University, Boston Center for Endometriosis
- Abby Norman, author, “Ask Me About My Uterus”
- Robert Neal Taylor, MD, PhD, Wake Forest University
- Kedra Wallace, PhD, Mississippi Medical Center
- Zev Williams, MD, PhD, Columbia University Medical Center
- Judy Wolf, MD, Provista Diagnositcs
- Paul Yong, MD, University of British Columbia, Women’s Centre for Pelvic Pain & Endometriosis
Sponsor
