The State of Research and Care for Endometriosis
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April 10, 2018
An estimated 10% of reproductive-age women are living with endometriosis, a condition that causes symptoms such as painful periods and heavy bleeding. However, the normalization of women’s pain and the stigmatization of menstrual issues have led to a lack of scientific innovation and public awareness. In April 2018, SWHR brought together a group of patients, clinicians, researchers and other relevant stakeholders for a roundtable meeting to identify unmet needs and knowledge gaps in endometriosis. Following the meeting, SWHR hosted a public panel discussion to raise awareness about the disease and bring attention to issues related to a woman’s diagnosis, treatment, and access to care.
Roundtable participants authored an expert review, Assessing Research Gap and Unmet Needs in Endometriosis, published in the August 2019 issue of the American Journal of Obstetrics & Gynecology. This work laid the foundation for SWHR’s Network on Endometriosis and Fibroids.
Objectives
- Review the state of the science regarding endometriosis
- Identify knowledge gaps in research, treatment and care
- Determine steps for overcoming these gaps
Roundtable Participants
Damian P. Alagia III, MD, Quest Diagnostics
Sawsan (Suzie) As-Sanie, MD, University of Michigan Endometriosis Center
Rebecca Black, patient advocate
Linda Giudice, MD, PhD, University of California, San Francisco
Tanika Gray, White Dress Project
Jhumka Gupta, ScD, George Mason University
Lisa Halvorson, MD, National Institute of Child Health and Human Development (NICHD)
Marc Laufer, MD, Harvard Medical School, Boston Center for Endometriosis
Alexandra Milspaw, PhD, LPC, 4Directions Counseling
Stacey Missmer, ScD, Michigan State University, Boston Center for Endometriosis
Abby Norman, author, “Ask Me About My Uterus”
Robert Neal Taylor, MD, PhD, Wake Forest University
Kedra Wallace, PhD, Mississippi Medical Center
Zev Williams, MD, PhD, Columbia University Medical Center
Judy Wolf, MD, Provista Diagnositcs
Paul Yong, MD, University of British Columbia, Women’s Centre for Pelvic Pain & Endometriosis
Sponsor
This program is supported by an educational sponsorship from Abbvie. SWHR maintains editorial control and independence over educational content.
