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The State of Research and Care for Endometriosis

April 10, 2018

An estimated 10% of reproductive-age women are living with endometriosis, a condition that causes symptoms such as painful periods and heavy bleeding. However, the normalization of women’s pain and the stigmatization of menstrual issues have led to a lack of scientific innovation and public awareness. In April 2018, SWHR brought together a group of patients, clinicians, researchers and other relevant stakeholders for a roundtable meeting to identify unmet needs and knowledge gaps in endometriosis. Following the meeting, SWHR hosted a public panel discussion to raise awareness about the disease and bring attention to issues related to a woman’s diagnosis, treatment, and access to care.

Roundtable participants authored an expert review, Assessing Research Gap and Unmet Needs in Endometriosis, published in the August 2019 issue of the American Journal of Obstetrics & Gynecology. This work laid the foundation for SWHR’s Network on Endometriosis and Fibroids.

Details

Date:
April 10, 2018
Event Categories:
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Organizer

SWHR

Objectives

  • Review the state of the science regarding endometriosis
  • Identify knowledge gaps in research, treatment and care
  • Determine steps for overcoming these gaps

Roundtable Participants

  • Damian P. Alagia III, MD, Quest Diagnostics
  • Sawsan (Suzie) As-Sanie, MD, University of Michigan Endometriosis Center
  • Rebecca Black, patient advocate
  • Linda Giudice, MD, PhD, University of California, San Francisco
  • Tanika Gray, White Dress Project
  • Jhumka Gupta, ScD, George Mason University
  • Lisa Halvorson, MD, National Institute of Child Health and Human Development (NICHD)
  • Marc Laufer, MD, Harvard Medical School, Boston Center for Endometriosis
  • Alexandra Milspaw, PhD, LPC, 4Directions Counseling
  • Stacey Missmer, ScD, Michigan State University, Boston Center for Endometriosis
  • Abby Norman, author, “Ask Me About My Uterus”
  • Robert Neal Taylor, MD, PhD, Wake Forest University
  • Kedra Wallace, PhD, Mississippi Medical Center
  • Zev Williams, MD, PhD, Columbia University Medical Center
  • Judy Wolf, MD, Provista Diagnositcs
  • Paul Yong, MD, University of British Columbia, Women’s Centre for Pelvic Pain & Endometriosis

Sponsor