SWHR Migraine Network members — including researchers, health care providers, patients and health care decision-makers — will provide thought leadership about migraine in the U.S. health care system, including:
- Identifying approaches for engaging, educating, and empowering patients, health care professionals, and health care decision-makers about the costs and burden of migraine
- Developing strategies and tools for implementing these approaches to inform and impact value driven health care decision-making
- Building a plan for reaching and mobilizing a broad community with an organized voice for advancing this work
Dawn Buse, PhD, Albert Einstein College of Medicine
Paul Fronstin, PhD, Employee Benefit Research Institute
Laurie Garner, PA-C, PhD, Woodford Family Physicians
Kelly Gavigan, MPH, Global Healthy Living Foundation
Brian Gifford, PhD, Integrated Benefits Institute
Toni M. Guglielmo, patient
Matthew Harman, PharmD, MPH, Employers Health
Emily Kandel, parent of patient
Lauren Neves, JD, PhRMA
Jelena Pavlovic, MD, PhD, Albert Einstein College of Medicine
Jaime Sanders, patient
Donna Shaw, patient
Karen T. Smith, patient
Amaal Starling, MD, Mayo Clinic
Christine Utley, DNP, RN, University of Toledo
Sara van Geertruyden, Partnership to Improve Patient Care
William B. Young, MD, Thomas Jefferson University
Migraine Patient Toolkit: A Guide to Your Care
Vetted by migraine patients and medical experts, the toolkit includes:
- What migraine is and who it affects
- A guide to talking with health care providers
- A monthly headache diary template
- Lists of lifestyle and medical interventions for preventing and treating attacks
- Tips for to talking with health insurance companies
- Steps to appeal a health claim denial
- A glossary of migraine terms
Peer-Reviewed Paper: Sex and Gender Differences in Migraine — Evaluating Knowledge Gaps, Journal of Women’s Health
- Why Sex and Gender Matter in Migraine, Scientific American
- Assessing and Treating Migraine in Women and Men, Practical Pain Management
- Why do women suffer more migraines than men?, Washington Post
- Better Migraine Diagnosis and Treatment Needed, Particularly in Women, EverydayHealth.com
- Why Migraine Research Needs to Be Sex-Specific, Migraine Again
- Let’s Talk About Sex: Better Understanding Of Hormonal Role in Migraine Needed, Pain Medicine News
- Report: Let’s Find Out Why Women Get Migraines More, National Pain Report
- New Research Sheds Light on Women & Migraine, Institute for Patient Access
- Doctor Radio, interview with Migraine Network member Dr. Jelena Pavlovic
- SWHR Letter to CMS on Step Therapy in Medicare Advantage, October 5, 2018
- SWHR Response to ICER Migraine Draft Evidence Report, May 8, 2018
- SWHR Comments to ICER on Migraine Review, November 30, 2017
Scientific Roundtable and Public Forum
SWHR launched its migraine initiative in October 2017 with a one-day closed roundtable and public panel discussion, Migraine Matters: Beyond Burden to Value. SWHR brought together 13 experts from a wide variety of backgrounds, including basic scientists, clinicians, behavioral scientists, and patient advocates, to explore the current state of the science regarding the role of sex and gender differences in migraine.
Migraine is a chronic debilitating, painful disease affecting more than 47 million Americans — 14% of the population — and is the second leading cause of global burden of disability. Migraine is three times more common in women than men and places significant burden on women, their families, and society as a whole.
- Migraine affects women differently than men.
- Women are more likely than men to experience longer and more intense migraine attacks, more symptoms such as nausea and visual aura, and higher levels of disability.
- Women account for 80 percent of an estimated $78 billion in direct and indirect costs associated with migraine in the United States
SWHR’s Migraine Patient Toolkit is a new resource with useful information about migraine diagnosis and treatment options, as well as tips on interacting with health care providers and health insurance companies to achieve the best possible outcomes.
To decrease the substantial health and economic burden of migraine on individuals and society, researchers need to examine and address how the disease differs between women and men, according to an SWHR report in the August issue of the Journal of Women’s Health.
For women with migraine, fluctuating hormonal levels both during their monthly menstrual cycle and over the course of their lifespan are intimately connected to their experience with migraine.
To draw attention to the need for research and policy changes to address migraine burden, advocacy group Research!America hosted a congressional briefing that included SWHR President and CEO Amy M. Miller.
SWHR has sole authority over the scope and content of this program. Sponsorship of this network does not imply agreement with any content and/or comments presented by the members during network proceedings.